this post was submitted on 27 Dec 2023
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[–] TootSweet 145 points 11 months ago* (last edited 11 months ago) (13 children)

It's so wild to hear that people don't know this.

I:

  • Fainted while watching TV on the couch.
  • Had a blood pressure of 80/40.
  • Have been to the ER twice.
  • Had long-running (over two years) chest pain, heart pounding, weight loss, vision differences, dizziness, shortness of breath.
  • Was so sick with those issues I was bed bound for months.
  • After I started feeling a little better, overdid it and put myself back to bed for a week. Twice. With easy shit like rearranging the canned goods cabinet.
  • Lost a tooth. (White lie, actually. I'm scheduled to have it extracted early February.)
  • Still have lingering heart pounding and dizziness on a not-infrequent basis.

All from covid.

I'm fortunate to be mostly recovered. It sucks that there are so many who haven't recovered to speak of.

[–] Gradually_Adjusting 42 points 11 months ago (1 children)

That's fucked, buddy. One can only wonder at the uncalculated costs of everyone who had it that bad.

[–] [email protected] 14 points 11 months ago (1 children)

If we knew the costs, we could charge the republican senators a share directly.

[–] fubbernuckin 8 points 11 months ago
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[–] [email protected] 87 points 11 months ago (12 children)

People look at me strangely, but I don't go in anywhere without a mask, still. I don't eat in restaurants, I don't go to indoor family gatherings without a mask.

It's a big sacrifice but I'm not willing to live with long COVID and brain fog.

[–] schrodingers_dinger 23 points 11 months ago* (last edited 11 months ago) (1 children)

As someone with long covid, it is fucking hell. The extreme fatigue, muscle soreness, lengthened healing times of wounds or new sicknesses or physical exertion have made life hardly bearable. I just straight up don't have the energy or mental capacity to do anything I used to love and enjoy.

It's endlessly depressing, even though I know I am keeping myself out of clinical depression after learning how to deal with depressive issues more proactively now.

I wish I just wore an n95 whenever I was around people now, but I know I never would have done so unless I knew how truly awful long covid is.

[–] SoleInvictus 7 points 11 months ago* (last edited 11 months ago) (1 children)

I'm there with you. If you haven't already, look into the treatments for mast cell activation disorder, it has a lot of overlap. In fact, I'm convinced they're largely the same thing. I'm popping pills like candy nowadays but I'm finally on the upswing.

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[–] [email protected] 58 points 11 months ago* (last edited 11 months ago)

If you haven't done so, check out PhysicsGirl on YouTube. Good science channel, then she got covid right after her wedding.

EDIT: Link to video.

[–] paddirn 50 points 11 months ago* (last edited 11 months ago) (4 children)

Long Covid is so scary, but one thing that worries me is, if you get Covid and you don't get Long Covid, is that it, you're never going to get it ever, OR is it just a matter of time before most of us or we're all eventually suffering from Long Covid over the course of multiple waves? Why is it affecting some people differently than others? I've had Covid two or three times now and each time I was only out of it a week or two, otherwise no apparent long-term damage that I'm aware of, but will that always be the case?

[–] [email protected] 61 points 11 months ago

The risk of long covid is cumulative so every infection increases your chance. But also just having covid increases your risk of heart attacks and strokes for up to a year https://nyulangone.org/news/study-helps-explain-how-covid-19-heightens-risk-heart-attack-stroke

[–] solrize 10 points 11 months ago

Covid messes up your immune system so even if you don't get long covid, you get other opportunistic infections, plus nice stuff like heart attacks. Of course if you die of such a heart attack, it's not counted as a covid death. So the damage of covid is way underestimated.

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[–] Johnvanjim 43 points 11 months ago (6 children)

I caught it for the first time a few months ago, relatively fit/healthy guy and it gave me the whammy for a full week (I could barely move, didn't want to eat at all, sweats, dizziness) I've never felt that bad in my life. Thankfully, no long covid here, aside from randomly coughing to clear up something left in my lungs once a day, but it put a 2-3 week sized hole in my life, it can show up with a vengeance, no joke.

[–] GarrettBird 34 points 11 months ago (20 children)

I got COVID after taking all precautions because my father didn't wear a mask and took it home. I was sick for a month. I only left my bed to use the bathroom or eat. I literally slept the rest of the time. I probably should have gone to the hospital because I could hardly stay awake even just to eat. I remember waking up one day, and just knowing that I was recovering.

Recovery was hell. I couldn't taste, or smell anything. I had awful flu like symptoms. I was lethargic and I could hardly walk. It took two weeks to feel functional, and for three months my sense of taste was completely fucked.

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[–] [email protected] 35 points 11 months ago (3 children)

I have lasting issues from a mild 2020 infection. My heart scares me the most these days.

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[–] afraid_of_zombies 33 points 11 months ago (2 children)

I know someone who has an advanced degree and had a pretty impressive career. I don't think he will ever be able to work a normal job again. He got it in the early days and the hospital told him not to come. Yes, brain damage.

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[–] rockSlayer 30 points 11 months ago

I caught it earlier this year at the peak effectiveness of my booster, so it was extremely mild. I still had a nasty cough for nearly 2 months after I recovered, and my memory is noticably worse.

[–] jantin 25 points 11 months ago (1 children)

To people who say it's oVeRbLoWn CoNsPiRaCy

Every viral disease may leave long term consequences, including the common flu. So can COVID. But we as a society got quite good at handling common flu. Also most people don't contract it that often and if they do it's a cause for medical attention. Meanwhile people are getting infected with COVID 3-4 times within 4 years and no one bats an eye besides "yeah, you're not lucky". So we were forced into pretending that going through a potentially heavily debilitating disease every 1-2 years is a perfectly normal thing and those who eventually "find out" are either just unfortunate or straight up lying.

Sadly facts don't care about our feelings and social setups. The endgame (that is max percentage of affected people) is at the level of 50% of the entire population with long covid at all times because the damage from subsequent infections accumulates. I just don't remember if the timescale for this was 10 or 20 years of unmitigated spread of the virus (that is: what we have now)

Meanwhile the new mutations are not really less severe. Only vaccinations make it so we're not seeing death rates of 2020 until today. And sooner or later one or another mutated form will evade all immunity, wheteher it emerges tomorrow or in 5 years.

Fun times ahead and, oh, remind me how well are health care systems faring right now when "the pandemic has ended"? Yeah, thought so. And these people are first in line to be affected so it won't be getting better. If anythong COVID is the one topic where doomerism is perfectly justified as we don't even try to pretend we're doing something like we are with climate.

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[–] 4lan 7 points 11 months ago (13 children)

Got COVID from my cousin during Christmas, still feeling terrible.

He went to the doctor and they didn't even test him. they just assumed it was the flu and gave him Tamiflu.

Tested myself after I got it and came up positive for COVID. It seems that our medical professionals are complicit in the cover-up of diagnoses. Once it left the news people just assumed it was gone.

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[–] droog_the_droog 7 points 11 months ago* (last edited 11 months ago) (6 children)

Anecdotally this statistic is just not right, or the hardships of long covid hits people very differently. Most people I know (hundreds) have had covid several times at this point. I know one person who believes to have long covid in a debilitating way.

[–] RunawayFixer 29 points 11 months ago (3 children)

I've had long COVID symptons (reduced sense of smell, instantly tired, heart going on a gallop for no or not much reason) for 6 to 7 months after my COVID infection, after which point those symptons suddenly cleared up. At the start I did hospital visits to have my heart checked out and everything, but nothing wrong could be found. I have no trouble believing that some people will never recover.

[–] [email protected] 9 points 11 months ago (2 children)

I’m going on 2+ years at this point. Was in the best shape of my life when I was infected. I haven’t been able to properly exercise ever since (without severe repercussions that last several days). My bloodwork, which was previously fantastic, is all over the place now. Outrageously high cholesterol, iron levels, inflammation markers. It’s hard having hope for the future when I don’t see an end in sight.

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[–] [email protected] 18 points 11 months ago (1 children)

10% does seem crazy high. But it's also possible that some long covid effects go noticed. Also totally anecdotally, but I heard multiple people say they just don't feel as fit now doing cardio, myself included. Is it we're just older or did we get slight lung damage? Or worse, heart damage. Our bodies are really surprisingly sturdy and able to keep up with damage for a long time.

I know 2 people with severe complications from long covid. And I don't know that many people. So how many around me are living with mild long covid complications and don't realize it?

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[–] [email protected] 13 points 11 months ago (3 children)

This is why anecdotes are not informative when trying to understand statistics. You almost certainly don't have a close relationship with hundreds of people that would involve informing you of lingering COVID symptoms nor do you have a random sampling of acquaintances (age, ethnicity, and vaccination status affect how common it is).

https://www.webmd.com/covid/news/20230526/one-in-ten-people-omicron-long-covid

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[–] steeznson 10 points 11 months ago (4 children)

The people who have experienced long-term effects are extremely vocal online but it's hard to imagine that it is as common as 1 in 10 given how many people have had covid.

I am extremely curious to see if they find a genotype or something which is an indicator for people being vulnerable to long-covid. It's possible that it will end up being a similar situation for ME/CFS where we have no specific biological markers which differentiate people who suffer from it (aside from the symptoms).

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