this post was submitted on 11 Mar 2024
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Assume that you only have the resources and money that you've acquired up to this point in your life, and you still have to pay rent, bills etc. You are basically physically capable of everyday activities but extreme feats (eg running marathons, climbing everest) are not realistic.

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[โ€“] [email protected] 4 points 9 months ago (1 children)

Well, I'm not exactly super rich from med bills right now, but being physically well enough to do normal stuff would be a pretty bittersweet miracle. I'd take it in stride.

I have a few loved ones who are pretty well off who would probably want to go on a few vacations with me, and I'd probably go do some cool stuff with some fandoms (I'm not even that into Xena but I want to go to a Xena event some time because that's real fandom goals IMO) to celebrate nice people who exist and raise awareness of whatever's killing me.

If I were dying, love to do something dumb like ask the world for enough stickers to cover an entire car with pokemon or ponies or dragons or something.

You would remember some obscure disease if it were the Dragon Sticker car, right?

[โ€“] DillyDaily 2 points 9 months ago

I'm not exactly super rich from med bills right now, but being physically well enough to do normal stuff would be a pretty bittersweet miracle.

Oh to just be told "it's terminal, you've got 6 months, good news, you'll have a surge of health before the end"

It's not what I would hope for from my life, but it sounds nice to finally be able to just, stop.

No more chasing down GPs for refferals, no more calling specialists asking if they've sent over results and reports. No more weekly appointments trying to find the right medication. Most more confusion over "is this symptom something new that's unrelated? Or Is it related? Will it be temporary? Is this symptom my new normal? Wait, is this a drug side effect?"

No more fighting with council to get ramp access to my house, no more stressing over how I will ever be able to afford the home care I'll need for the extended duration I'll need it on the income my disability limits me to.

No more looking at my mother and my auntie's as they slowly crumble, while still being expected to suck it up and bear the responsibilities they always have. No more seeing the long, deteriorating future ahead of me reflected by my loved ones.

No more "oh, you're chronically ill? have you tried drinking water and doing yoga?"

No more "you don't look sick"

I've only got 6 months to have to put up with any of this, and then I'm gone.

I'd prefer to be alive, but I wouldn't be upset at the universe if that's the hand I was dealt.

6 months is a good time frame. Certainly beats getting hit by a bus tomorrow - who would look after me cat?