this post was submitted on 16 Sep 2024
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I got a diagnosis today after trying to figure out what's wrong with me for twenty years. My grandmother died at a relatively young age of lupus complications and she had to end her whole career at 36 because she was so sick. I'm 27, and I am terrified I'm going to end up like her. Her quality of life was absolutely awful for the entire time I knew her. I don't want that for myself.

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[โ€“] Prok 7 points 1 month ago (1 children)

Can't speak first hand but someone I know has it. Medication and some lifestyle changes keep it manageable for them. I don't mean to lighten the weight of it too much, but I wish you the best.

[โ€“] roofuskit 6 points 1 month ago

As someone with Lupus I can echo this. Now that you know and can get tailored treatment it's the start of getting better not worse.