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Does anyone else here have lupus? Just got diagnosed and I am really scared/upset (self.asklemmy)

submitted 1 month ago by LaunchesKayaks to c/asklemmy

22 comments fedilink hide all child comments

I got a diagnosis today after trying to figure out what's wrong with me for twenty years. My grandmother died at a relatively young age of lupus complications and she had to end her whole career at 36 because she was so sick. I'm 27, and I am terrified I'm going to end up like her. Her quality of life was absolutely awful for the entire time I knew her. I don't want that for myself.

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[–] TheRealKuni 13 points 1 month ago (1 children)

My grandmother died at a relatively young age of lupus complications and she had to end her whole career at 36 because she was so sick. I'm 27, and I am terrified I'm going to end up like her. Her quality of life was absolutely awful for the entire time I knew her. I don't want that for myself.

Selena Gomez has lupus and Only Murders in the Building, entirely made after her diagnosis, is the best thing she’s done in her career, IMO.

The world has changed. Stay strong, you can do this!

[–] roofuskit 8 points 1 month ago

I actually found out she had it by watching that show. I was looking at her thinking, "she's got the moon face." Something that happens to us especially when we're forced to take corticosteroids during a bad flair. And then I looked it up and was right. Lady Gaga also has lupus and is obviously still an international superstar. So I think OP will be fine as long as they don't do an extremely rough physical job or work outside.