this post was submitted on 22 May 2024
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Yup. I've ulcerative colitis and every fucking time I've mentioned it I inevitably get people trying to give me "advice" despite me making it clear that I don't want or need it. Fuck, I even had one asshole tell me not to fucking take medical advice and go on a medication which I have done and it's fucking got rid of my flare up that I've had since January.
I've had someone tell me that I shouldn't have dairy because their wife has UC and she can't have dairy, I have an IBD nurse that I can contact for advice and she has told me that dairy is potentially ok and I've been having dairy since I've been out of hospital for 3 weeks and it's done nothing to me. I've had people tell me to eat healthier yet when having a flare up I can't have fibre, onions, garlic, vegetables in general (unless they're mush like) anything with seeds in it, potato skins, red meat and food high in fat. basically I'm restricted to white meat, rice and potatoes (without skin so like mash) and white breads. The only people I listen to to deal with my chronic illness is my consultant and my nurse, everyone else can fuck off.
fuck man, this is even more of an extreme example than even i imagined. sorry the internet is such a smarmy know it all but glad you have it more or less figured out ! <3
I have a similar issue as somebody with a case of dysphagia worsened by certain foods, which happen to be 90% of what you're supposed to eat to be healthy (suspected to be a combination of eosinophilic esophagitis and another unknown condition.)
The amount of times on various social media platforms I've been told to "suck it up and just eat them anyway" as if my condition isn't real and that won't cause me to choke to death is absurd.