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You were disabled. You're stuck laying down most of the day. What do you do to earn a living and survive? (self.asklemmy)

submitted 7 months ago by j4k3 to c/asklemmy

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You were disabled and realize it is not getting better, and no one seems to be able to fix the issue. You're stuck laying down most of the day, you have enough mobility to function at home, but anything outside of home leaves you in bad shape beyond your control where you are not professionally functional. What do you do to earn a living and survive?

This is not a hypothetical for me.

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[–] j4k3 22 points 7 months ago (8 children)

I tried that. I'm in a weird position where it is impossible to prove what is actually wrong with me in a way that I can get through disability. I did it once and was denied because I can't prove anything conclusive. I've been to everyone reputable and a few less reputable; 12 neurosurgeons or specialists. They all spend 5 minutes reading the radiologist's report, don't see a thing they want to operate on, and spend another few minutes talking you out of the room. None of them seem willing to solve problems and look deeper.

[–] [email protected] 11 points 7 months ago* (last edited 7 months ago) (6 children)

You may have something different but if you have me/cfs you need to hit up the support groups, you can prove disability with a 2-Day CPET test.

I'm not in the US but many of the Americans in my support group were denied the first time they applied and got it on the second.

[–] j4k3 3 points 7 months ago (5 children)

I'm not sure what the acronyms mean.

[–] [email protected] 5 points 7 months ago

https://www.cdc.gov/me-cfs/index.html

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