this post was submitted on 28 Sep 2024
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News

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[–] [email protected] 147 points 1 month ago (2 children)

DNA might contain health information, but unlike a doctor’s office, 23andMe is not bound by the health-privacy law HIPAA. And the company’s privacy policies make clear that in the event of a merger or an acquisition, customer information is a salable asset. 23andMe promises to ask its customers’ permission before using their data for research or targeted advertising, but that doesn’t mean the next boss will do the same. It says so right there in the fine print: The company reserves the right to update its policies at any time. A spokesperson acknowledged to me this week that the company can’t fully guarantee the sanctity of customer data, but said in a statement that “any scenario which impacts our customer's data would need to be carefully considered. We take the privacy and trust of our customers very seriously, and would strive to maintain commitments outlined in our Privacy Statement.”

[–] whostosay 77 points 1 month ago (1 children)

We take it very seriously, just not as seriously as money.

[–] [email protected] 10 points 1 month ago

“I mean, we would have to receive a pretty excellent offer to violate our customers’ privacy—which is super important to us. (We reserve the right to also accept offers ranging from “pretty decent” to “doable,” or in the event of our profits not really getting us hard anymore, we may also accept “any” offer.) Your privacy is very important to us.”

[–] danc4498 14 points 1 month ago

There needs to be government protection of your DNA, but the government probably doesn’t want that