Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

founded 5 months ago
MODERATORS
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submitted 5 months ago* (last edited 5 months ago) by mecfs to c/chronicillness
 
 

Hiya, since most illnesses have too few people who use lemmy to have a nice community, I created this community for everyone with a chronic illness.

If you want to be added as mod, please just ask!

❤️

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Sorry, I'm late.

What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

I both feel better and worse this week. I seem to have a little bit more energy. But I'm also hurting more. No idea what to make of that.

But my son made some awesome meals for me. And Christmas cookies.

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Tldr:

  • Mindset: Pessimism + self compassion
  • There are no solutions therefore we need to cherish good days
  • Most people aren't helpful so we must keep looking for those who are
  • Honor the distinction with other people - don't let sudden optimism to ruin your life
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I describe it like this... (self.chronicillness)
submitted 1 week ago by jordanlund to c/chronicillness
 
 

Every time I stand up, an invisible hour glass turns over. Nobody can see it, so you have no idea how much sand is in it, or how fast it's running out.

But when it runs out, I'm done.

Bonus: Every time it resets, it's a different size. Maybe this one is bigger? Maybe this one is smaller?

Nobody knows until it runs out.

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How do I accomadate her?

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She's right (lemmy.blahaj.zone)
submitted 1 week ago by [email protected] to c/chronicillness
 
 
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The word “hysteria” inherently evokes misogyny. Deriving from the Greek word for “uterus,” it was used in ancient Greece as a diagnostic label for women with symptoms ranging from dizziness to paralysis and menstrual pain—all of which were attributed to a “wandering womb.” Throughout history, the label was given to women who were perceived as unreasonably ambitious, attention-seeking, neurotic, or sexually dissatisfied. In Freudian times, it eventually evolved to refer to a mental disorder thought to primarily affect women, causing physical manifestations.

In an age of medical advancement and greater attention to gender equity, most of us would consider this gendered catch-all diagnosis for unexplained ailments to be unthinkable. But chronically ill people of marginalized gender identities, and just about anyone with a chronic health condition that disproportionately affects women, can attest that modern medicine hasn’t progressed as far beyond the hysteria diagnosis as one might expect.

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What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

My brother visited this weekend. Was nice seeing him again. And he went to a bunch of expensive restaurants bringing delicious food.

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What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

A kind soul here on Lemmy gifted me Gotham Knights. I don't have rhe energy to play at the moment but one of my kids will probably appreciate it.

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Just wanted to share here because I know a lot of us have gone through gaslighting from the medical system which often results in extensive trauma.

You are not alone. And this study shows it.

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What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

I got some new wet wipes and will henceforth usher in a brand new age of cleanliness!

Oh, and my Christmas present for my wife arrived and it's lovely seeing her wonder what's in it. It's a T-Rex skull replica. And I ordered at the corded time because now it's sold out.

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I need this! (images.bjoern-tantau.de)
submitted 1 month ago by [email protected] to c/chronicillness
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What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

My mom sent me a Weckmann for the St Martins feast because we don't have those here.

It's fat and ugly and missing an eye (ugh, raisins, don't like them anyways) and I love it!

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What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

With all the election stuff at least we have some good memes again. And on top of everything our government (in Germany) is currently breaking up, which means even more funny memes. Hooray!

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Our internet went down an hour ago and I have to contend with the crappy metered connection in my phone. Really strange feeling how isolated I suddenly am. Took a while until all my family member's phones switched from wifi to mobile.

My laptop, which is my usual connection to the world, is still out. Guess I'll open up a hotspot. Until all my data is gone.

Very humbling.

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We’re going to need to stick together and help our most vulnerable if we are to survive the next four years.

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Tja (swg-empire.de)
submitted 1 month ago by [email protected] to c/chronicillness
 
 
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