I have endometriosis and it seems like growths are coming back only two years after removal. My specialist is just going to do a hysterectomy to nip the issue in the bud.

I'm so happy that I could cry. I've wanted one for so long and I'm finally getting it!

I was so close to canceling my appointment today because I missed so much work already this week. So glad I didn't!

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I was able to do a bunch of things before. Draw, make music, program. But I feel like the pain really got to me and I just lay in my bed. I want to draw, but I'm so tired of it hurting. I'm doing everything I like less frequently, and I'm scared of not being able to do them anymore. I'm scared of not being able to even attend class anymore, or go outside and play with my friend

There is a cure for my illness I know it, but they just won't give it to me because I'm too young, and my parents probably want me to have children. I feel like they would rather see me whirl in pain. I hate it so bad.

What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

I finally managed to nudge my sleeping rythm to the same one the rest of my family has. Makes getting regular meals much easier and I like that I can actually talk to them.

Happy New Year!

What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

New years eve was nice. My kids and my wife surprised me every so often with their raclette creations. And on new years they launched fire works in front of my window.

I'm just asking because while they've mentioned extreme fatigue and weakness, migraines, muscle and joint aches, hand tremors, dizziness and lack of balance, I haven't heard too many people sharing my hallucinations as a symptom.

I have heard voices on a few occasions, I've been acting out dreams, and I'm getting these olfactory hallucinations now. I'm pretty sure it's neurological whatever I have, but we're still testing to find out what's going on.

I don't have confusion or loss of memory or problems carrying out tasks, or at least as my kids say, no more than usual, lol.

Feedback welcomed, particularly anybody encountering symptoms regarding hallucinations without mental illness.

Merry Xmas everybody!

What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

My family included me in the festivities by setting up a laptop with a webcam. That way I could also mute it if it became too loud. And we could also include my parents who live 400 km away. Was really nice.

What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

Life is Strange: Double Exposure was discounted this week so I gave myself an early christmas present. It's a little bit buggy and not as good as the first one but I still love having an easy cozy game to play.

Sorry, I'm late.

What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

I both feel better and worse this week. I seem to have a little bit more energy. But I'm also hurting more. No idea what to make of that.

But my son made some awesome meals for me. And Christmas cookies.

Tldr:

• Mindset: Pessimism + self compassion
• There are no solutions therefore we need to cherish good days
• Most people aren't helpful so we must keep looking for those who are
• Honor the distinction with other people - don't let sudden optimism to ruin your life

Every time I stand up, an invisible hour glass turns over. Nobody can see it, so you have no idea how much sand is in it, or how fast it's running out.

But when it runs out, I'm done.

Bonus: Every time it resets, it's a different size. Maybe this one is bigger? Maybe this one is smaller?

Nobody knows until it runs out.

How do I accomadate her?

The word “hysteria” inherently evokes misogyny. Deriving from the Greek word for “uterus,” it was used in ancient Greece as a diagnostic label for women with symptoms ranging from dizziness to paralysis and menstrual pain—all of which were attributed to a “wandering womb.” Throughout history, the label was given to women who were perceived as unreasonably ambitious, attention-seeking, neurotic, or sexually dissatisfied. In Freudian times, it eventually evolved to refer to a mental disorder thought to primarily affect women, causing physical manifestations.

In an age of medical advancement and greater attention to gender equity, most of us would consider this gendered catch-all diagnosis for unexplained ailments to be unthinkable. But chronically ill people of marginalized gender identities, and just about anyone with a chronic health condition that disproportionately affects women, can attest that modern medicine hasn’t progressed as far beyond the hysteria diagnosis as one might expect.