Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

founded 7 months ago
MODERATORS
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As many of you might have seen “disabled” “disability” “accessibility” etc are among the words being purged by the Trump admin.

This means no new grant proposals for research for example can contain these words or it won’t get funded. And that government websites (like NASA and other agencies) are being forced to remove these words.

This is a very scary time for us all, and ontop of everything, there seems to be very little recognition of the harms Trump is doing to disabled people in the media or in activist groups and such.

I know how scary and isolating this can feel. I’m putting this thread up so people can vent and share.

❤️❤️❤️

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submitted 7 months ago* (last edited 7 months ago) by mecfs to c/chronicillness
 
 

Hiya, since most illnesses have too few people who use lemmy to have a nice community, I created this community for everyone with a chronic illness.

If you want to be added as mod, please just ask!

❤️

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cross-posted from: https://ponder.cat/post/1604211

Trump State Department official has called for mass sterilization of ‘low-IQ trash’

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In this thread you can vent, celebrate, both, or anything else and I'll root for you n_n

There are no small victories and very few definitive defeats \o

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Section 504 (lemmy.dbzer0.com)
submitted 5 days ago by [email protected] to c/chronicillness
 
 

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What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

My son made dinner this week. He's still learning to cook but man, that was some great food. Felt good.

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submitted 1 week ago* (last edited 1 week ago) by [email protected] to c/chronicillness
 
 

ID:

"Me: *stands up really fast*

My entire body:"

Bellow are 12 different engine warning lights that you would have on a car dashboard.

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What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

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I see her every 2-3 weeks at the moment. I only mentioned the symptoms* that I know can be related to the disease I'm seeing her for. They apparently shouldn't be near as bad, according to the results of my blood test (she usually calls me a few hours to a day after the appointment to tell me the results). So now I have yet another health issue to figure out, yay!

Anyone willing to bet whether I'll be diagnosed as 'stressed' or 'skinny young woman' this time? Those were my diagnoses plenty of times when I described those symptoms. I'm not even a woman, so it comes with a little side dish of dysphoria.

*Light headedness and fainting to the point I don't feel safe standing too long (though walking is fine), extreme night sweats, very high heart rate and very low blood pressure

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No spoons (lemmy.dbzer0.com)
submitted 2 weeks ago by [email protected] to c/chronicillness
 
 

ID: photo of a framed embroidery of 7 different knives and switchblades each in a colour of the rainbow, at the top it says "no spoons left" and bellow "only knives"

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submitted 2 weeks ago* (last edited 2 weeks ago) by [email protected] to c/chronicillness
 
 

Posting before I'm too lazy.....

I asked my Massachusetts Rheumatologist if I could try LDN for Fibromyalgia and she said not for off label use.

Guess I'll just suffer.

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-_- (lemmy.dbzer0.com)
submitted 2 weeks ago* (last edited 2 weeks ago) by [email protected] to c/chronicillness
 
 

ID: image from Legally Blonde of a depressed Elle in bed eating chocolates, angry at what she's seeing on tv, on it is pink text: "my body hurts and I'm mad about capitalism"

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A white background with an all black icon of a person with eyes closed, crying, and holding their right hand to the face. The caption reads:

I am chronically ill

daily I take pills

to keep climbing the hill

while engaging my skills

to help you get your fill

while I shitpost for thrills

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cross-posted from: https://lemmit.online/post/5022911

Based on user suggestions, an attempt at rebranding

This is an automated archive made by the Lemmit Bot.

The original was posted on /r/cfs by /u/Covidivici on 2025-01-27 05:32:13+00:00.

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What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

I'm about to get a proper caretaker. We just have to figure out how much I can handle per week? month? Anyway, some help for my wife with regular cleaning will be nice.

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I have endometriosis and it seems like growths are coming back only two years after removal. My specialist is just going to do a hysterectomy to nip the issue in the bud.

I'm so happy that I could cry. I've wanted one for so long and I'm finally getting it!

I was so close to canceling my appointment today because I missed so much work already this week. So glad I didn't!

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see more helpful bots at the author's page

https://mastodon.social/@smolrobots

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I was able to do a bunch of things before. Draw, make music, program. But I feel like the pain really got to me and I just lay in my bed. I want to draw, but I'm so tired of it hurting. I'm doing everything I like less frequently, and I'm scared of not being able to do them anymore. I'm scared of not being able to even attend class anymore, or go outside and play with my friend

There is a cure for my illness I know it, but they just won't give it to me because I'm too young, and my parents probably want me to have children. I feel like they would rather see me whirl in pain. I hate it so bad.

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What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

I finally managed to nudge my sleeping rythm to the same one the rest of my family has. Makes getting regular meals much easier and I like that I can actually talk to them.

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