This sucks so bad!
this post was submitted on 17 Jan 2025
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Chronic Illness
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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
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I really feel for you, I became ill quite young and had to quit doing creative stuff, along with most everything else. I also had a pretty shaky relationship with my parents, which is now non-existent.
It really sucks that you're being kept in pain because of your age, and because of what other people expect you to do for them. Is there any way for you to emancipate yourself? Or maybe there are organisations for people with your, or similar, condition, who have advocates who can help you fight for your right to treatment?
As for slowly losing the ability and or motivation to do things, that's rough, and sometimes there just isn't a solution, I know, I now spend almost all of my time in bed and no longer do any of the things I used to do. You just need to go through the mourning process, and come to accept it as best you can, though by the sound of it, you don't have to be at that point, so it really is worth trying to fight to avoid it (but also, I tried for years to get family and doctors to listen to me and they didn't, so I know how hard and frustrating it can be).
Anyway, one thing I have found helpful is knowing that I'm not the only person in my situations. There are many of us out there, we just either don't have the energy or platform to be loud and demand (or want) attention, or are ignored and overlooked and told to stop making things up or being so "difficult". But we do exist! And the internet has made it so much easier for us to find and connect with each other, and get validation for our situations, and comfort and support, from people who actually understand. 💜