That's crazy. My VA primary care doctor let me try LDN for fibro a decade ago. It didn't help me, but I have a friend who tried it for EDS and they are able to function most days because of it. Are they not offering you an alternative? (Gabapentin is what I have been on, although I know it doesn't work for everyone)
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Gabapentin and Amitriptyline made me sucidial and extra special dissociative/depersonalized did help nerve pain and migraines tho lol.
Drs didn't wanna try any other similar meds like Lyrica or Nortriptyline after.
I'm gonna attempt getting a new neurologist since my last one ghosted me and my rhumo is useless....
I went in on that one too hard I suppose....I mean my father had just died from brain cancer and I was worried about my bad migraines, was why I was seeing the neuro before I also got Fibro DX.
I do have my state Medical card so there's that at least. But sux being in pain/sensations 24/7. I'm only 6 years in now.