this post was submitted on 13 Oct 2023
120 points (99.2% liked)

Autism

6933 readers
167 users here now

A community for respectful discussion and memes related to autism acceptance. All neurotypes are welcome.

We have created our own instance! Visit Autism Place the following community for more info.

Community:

Values

  • Acceptance
  • Openness
  • Understanding
  • Equality
  • Reciprocity
  • Mutuality
  • Love

Rules

  1. No abusive, derogatory, or offensive post/comments e.g: racism, sexism, religious hatred, homophobia, gatekeeping, trolling.
  2. Posts must be related to autism, off-topic discussions happen in the matrix chat.
  3. Your posts must include a text body. It doesn't have to be long, it just needs to be descriptive.
  4. Do not request donations.
  5. Be respectful in discussions.
  6. Do not post misinformation.
  7. Mark NSFW content accordingly.
  8. Do not promote Autism Speaks.
  9. General Lemmy World rules.

Encouraged

  1. Open acceptance of all autism levels as a respectable neurotype.
  2. Funny memes.
  3. Respectful venting.
  4. Describe posts of pictures/memes using text in the body for our visually impaired users.
  5. Welcoming and accepting attitudes.
  6. Questions regarding autism.
  7. Questions on confusing situations.
  8. Seeking and sharing support.
  9. Engagement in our community's values.
  10. Expressing a difference of opinion without directly insulting another user.
  11. Please report questionable posts and let the mods deal with it. Chat Room
  • We have a chat room! Want to engage in dialogue? Come join us at the community's Matrix Chat.

.

Helpful Resources

founded 2 years ago
MODERATORS
 

it's very irritating. does anyone else experience this? it's just looming for a week ahead of time, i'm thinking about it every day, it's practically a pall upon my shoulders that i'm going fucking apple picking with family tomorrow

sick of it. i assume this is a manifestation of the schedule interruption thing?

all 18 comments
sorted by: hot top controversial new old
[–] Zaros 29 points 1 year ago

I used to have this problem until I realized that pretty much none of the obligations are really obligatory. Now I have a new, different set of problems instead.

[–] [email protected] 10 points 1 year ago (3 children)

This reminds me of something I saw where someone was talking about how their brain goes into "waiting" mode when they know they have some kind of obligation later in the day, and they can't focus or enjoy themselves even if it is hours away. Both that and this post speak to me a lot.

[–] [email protected] 2 points 1 year ago* (last edited 1 year ago)

I have this "waiting mode" too but it's only for things happening on the same day. The more important the appointment the more hours before it starts. In this time it's close to impossible to concentrate on anything not related to preparation of the event (even if it requires none) and absolutely impossible to get real rest.

edit: The best strategy I have found so far is scheduling important appointments as early in the day as possible.

[–] [email protected] 2 points 1 year ago

This except the thing could be days or even weeks away. When I was younger I would simply avoid accepting any such future "obligations". I always had to be be on the same routine. Actually I still like to be on the same routine, but heavily using my phone's calendar to schedule things and forget them until they're close worked wonders. It's still a struggle sometimes but I'm in my 40 now and functioning.

[–] AstridWipenaugh 2 points 1 year ago (1 children)

Wow, yeah... 1-2 hours of free time before a commitment is often utterly wasted. Can't shift my focus to anything else. I was nervous for hours leading up to a concert I went to recently. I've been to the venue so many times, but I was unfamiliar with the headliner and was on edge until I was seated waiting for it to start.

[–] [email protected] 1 points 1 year ago

Yup, that sounds like "waiting mode" alright.

[–] [email protected] 10 points 1 year ago

The way I partially solved this for myself is to put all my obligations to other people into a single note on my phone. Then, I just check the note once a day, set phone alarms with titles for any commitments coming up (usually only the next day), and forget about it. If the commitment is particularly complex, I'll write up a full set of notes before I go to bed (when I'm ruminating about it) and make sure it is the first thing I will see (after the lock screen if you use one) when my alarm wakes me up.

It's "partially" solved because I still want a ton of notice before I agree to any commitments, which some people are not amenable to. But once I get that notice, I'll be there whether I want to do or (wildly more likely) not.

[–] [email protected] 9 points 1 year ago

This is everyone in the world I think. Like even people who like their jobs, it’s work because it’s usually scheduled. Going on vacation? fuck I might not really feel like it that day and there’s so much to do before hand. Some fun outing? If it’s scheduled it’s also a pain in the ass.

[–] [email protected] 6 points 1 year ago

Are there any events that you refuse to miss that are not scheduled by you? Movies, TV shows, concerts or something similar?

Try to think of family events in the same way. Give yourself permission to disrupt your normal schedule in the same way you would for a special one-time event. If you try it and your anxiety level doesn't improve, you can always go back to dwelling on it to the point of dreading.

[–] Trincapinones 4 points 1 year ago* (last edited 1 year ago)

The same thing happens to me and it is exhausting

[–] BackOnMyBS 4 points 1 year ago (1 children)

oh.my.god...You put words on an experience I have several times each day that I didn't know how to express. Literally, 99% of everything I agree to do or schedule to do for myself feels like an obligation. It can be dinner with a friend, getting a massage, going to sleep, waking up, going on vacation, showering, or trying on shoe sizes. Nearly EVERY SINGLE THING I SCHEDULE is preceded by me regretting to have scheduled it, followed by me being upset that I have to do it. If it was something I enjoyed, I would then get upset with myself afterwards for wanting to avoid it, followed by taking a futile note to not want to avoid it next time. Why is this a thing? It's so exhausting.

Could this be an ADHD thing also? On the few occasions that I have taken an ADHD stimulant, I have actually been excited to do something

[–] theragu40 2 points 1 year ago (1 children)

This is how my wife and I are, as well. It really is exhausting.

I think some of it is a level of social anxiety. Some of it is this feeling of not wanting to "waste" our time (even though we understand rationally that doing nothing is usually the more objective waste). Some of it is a constant feeling of exhaustion, and a fear that whatever thing we are planned for will result in us feeling even more exhausted. And maybe part of it is simply depression.

I don't know, but it's not a super healthy-feeling way to go through life, that's for sure.

[–] BackOnMyBS 2 points 1 year ago (1 children)

Sucks that you guys are going through that. Hopefully, you guys could figure a way out.

[–] theragu40 2 points 1 year ago

Hey, you too buddy. Thanks. As with anything there are ups and downs. We just take each day as it comes.

[–] [email protected] 3 points 1 year ago* (last edited 1 year ago)

It does though, I don't take it as necessarily bad unless of course I don't have an exact timeline for said thing. I hate when given vague statements like "sometime this afternoon" or "in a little while." If I have a precise time for it, it stays in my mind just enough that I don't forget. But if I don't have any timeline, it ruins my entire day. I can't plan around it, and I dread starting something else only to be interrupted midway through.

[–] [email protected] 3 points 1 year ago

I recently learned about Pathological Demand Avoidance - it’s been helpful as a framework for me to understand some of my own frequent experiences in this area. Particularly in the instances when it’s all internal: a goal I’ve set or a promise I’ve made to myself can often become the one thing I will avoid at all costs for no apparent reason. Between PDA and just general executive dysfunction (yayy AuDHD), learning about these things helps me understand why it can be so unbelievably hard for me to get anything done sometimes. Still sucks, but it makes more sense :)

[–] [email protected] 2 points 1 year ago

Is this a trait of autism ?