A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for people to spout their opinions on disability.
Be excellent to each other
Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
No denialism or minimisation This applies challenges faced by chronically ill people.
No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
cross-posted from: https://slrpnk.net/post/13622677
Same goes for an injury.
I have no thyroid so I have to take a pill to give me the hormones that the missing gland does not. I got asked for how much longer I would have to take the pills. I replied that I could stop the moment I grew a new thyroid. I'm not sure if they caught on to the sarcasm.
Don't answer if you don't want to, but how are you finding thyroid free life? My doctor is kind of recommending it for me, but I'm on the fence (context: I have Graves' disease, autoimmune hyperthyroidism)
Perfectly fine actually. I do get lethargic from time to time and I do need a nap on occasion, but that's a small price to pay. My temper is way better now too. Any complaints I have are more to do with the surgery itself. I had stage 3 cancer so the surgery went well beyond the thyroid.
If you have the means to travel, I highly recommend The Clayman Thyroid Surgery Center. They pride themselves on leaving near invisible scars.
So your arm still didn't grow back? I'll check on you later again
"But you slept yesterday!!!"
They think the Chronic part of Chronic illness means it's solved with medical Marijuana.
I have the opposite problem, where people assume chronic means it's permanent and it can't get better. I know it often does, but not always. So I get accused of lying and faking when people see me do a thing that I previously didn't want to do because it caused me pain.
Resource... https://butyoudontlooksick.com/
Also most well-known page, Spoon Theory... https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
Same goes for an injury.
And any sort of handicap or limitation you have, especially if it's a non-neurotypical thing.
They get angry at you when they specifying ask about it and you accidentally answer truthfully.