this post was submitted on 24 Sep 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

founded 4 months ago
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cross-posted from: https://slrpnk.net/post/13622677

Same goes for an injury.

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[–] [email protected] 17 points 1 month ago (1 children)

I have no thyroid so I have to take a pill to give me the hormones that the missing gland does not. I got asked for how much longer I would have to take the pills. I replied that I could stop the moment I grew a new thyroid. I'm not sure if they caught on to the sarcasm.

[–] Droggelbecher 3 points 1 month ago (1 children)

Don't answer if you don't want to, but how are you finding thyroid free life? My doctor is kind of recommending it for me, but I'm on the fence (context: I have Graves' disease, autoimmune hyperthyroidism)

[–] [email protected] 2 points 1 month ago

Perfectly fine actually. I do get lethargic from time to time and I do need a nap on occasion, but that's a small price to pay. My temper is way better now too. Any complaints I have are more to do with the surgery itself. I had stage 3 cancer so the surgery went well beyond the thyroid.

If you have the means to travel, I highly recommend The Clayman Thyroid Surgery Center. They pride themselves on leaving near invisible scars.