Lemmy.World

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The World's Internet Frontpage Lemmy.World is a general-purpose Lemmy instance of various topics, for the entire world to use.

Be polite and follow the rules ⚖ https://legal.lemmy.world/tos

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https://a.lemmy.world - Alexandrite UI
https://photon.lemmy.world - Photon UI
https://m.lemmy.world - Voyager mobile UI
https://old.lemmy.world - A familiar UI

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Lemmy.World is part of the FediHosting Foundation

founded 1 year ago

ADMINS

Do No Harm: Don't give Big Tech access to our medical records (act.wemove.eu)

submitted 1 year ago by [email protected] to c/[email protected]

4 comments fedilink

cross-posted from: https://lemmy.ml/post/1181011

We want the right to privacy over our medical records. This means having control over our personal health information, who has access to this information and for what purpose.

We demand you to amend the European Health Data Space by:

Requiring explicit consent from patients regarding sharing of medical records for purposes not directly related to treatment(aka for secondary use)

Limiting the extensive categories of ‘health data’

Narrowing the scope of how this information can be used, and who can access it

Do No Harm: Don't give Big Tech access to our medical records (act.wemove.eu)

submitted 1 year ago by [email protected] to c/[email protected]

1 comments fedilink

We want the right to privacy over our medical records. This means having control over our personal health information, who has access to this information and for what purpose.

We demand you to amend the European Health Data Space by:

Requiring explicit consent from patients regarding sharing of medical records for purposes not directly related to treatment(aka for secondary use)
Limiting the extensive categories of ‘health data’
Narrowing the scope of how this information can be used, and who can access it