this post was submitted on 18 Jun 2023
176 points (93.1% liked)

ADHD

9769 readers
176 users here now

A casual community for people with ADHD

Values:

Acceptance, Openness, Understanding, Equality, Reciprocity.

Rules:

Encouraged:

Relevant Lemmy communities:

Autism

ADHD Memes

Bipolar Disorder

Therapy

Mental Health

Neurodivergent Life Hacks

lemmy.world/c/adhd will happily promote other ND communities as long as said communities demonstrate that they share our values.

founded 2 years ago
MODERATORS
 
top 35 comments
sorted by: hot top controversial new old
[–] kevinbacon 52 points 2 years ago (4 children)

Imagine gatekeeping a disability.

[–] CreeperODeath 12 points 2 years ago

Welcome to the internet lmao

[–] [email protected] 10 points 2 years ago (1 children)

Yeah, believe me. I wish I didn't have it.

[–] [email protected] 1 points 2 years ago* (last edited 2 years ago)

I feel the same way and I don’t understand why anyone would downvote you for your honest comment.

[–] AcidOctopus 9 points 2 years ago

I imagine it's actually quite harmful.

People should be encouraged took seek advice and help if they suspect they have any kind of mental disability. It's stigmatized as it is, to the point that many people actively shy away from acknowledging their condition, or, get concerned that they're just overreacting, don't really have the condition, and are instead some kind of faker/imposter, doing harm by putting demand on a care system that they feel other people are more deserving of, and generalising a serious condition.

If people suspect they need help, they should be encouraged to seek it. It's not a contest and they shouldn't feel ashamed.

[–] Blackstar1886 6 points 2 years ago

Science is gatekeeping my imagination.

[–] Blackstar1886 28 points 2 years ago* (last edited 2 years ago) (4 children)

Gonna have to disagree with this. Not having a diagnosis gives people the false impression that ADHD is a state of being, a minor hindrance like having an “off day.” It makes it seem less distinct and thus taken less seriously. When that happens and someone seeks an accommodation at work or school they are much less likely to be taken seriously — which inhibits their ability to function in society.

Taking any prescription medication for a condition you do not have is fucking stupid and/or dangerous.

TLDR: Self-diagnosing is foolish and misinformation harms people that truly require equitable accommodations.

[–] [email protected] 20 points 2 years ago

I have OCD and after the T.V show "Monk", tons of people thought they had OCD for being very organized, etc. Media DOES greatly impact people's notions of things and all the TikTok stuff can be very misleading and outright dangerous.

[–] [email protected] 7 points 2 years ago

I have to agree with this. I've had too many conversations that were like: Me, describes some of my ADHD symptoms. Other person, oh I feel like that sometimes maybe I have ADHD. Me, no not like that.

[–] Piecemakers3Dprints 6 points 2 years ago

Truth. The whole "the worst that can happen" phrasing is such juvenile myopism; destigmatizing ADHD is a fantastic goal, but too many people crying wolf just undermines the legitimacy we're actively working toward.

As a lifelong ADHD mutie (I prefer to flip my perspective on my own aspects, finding the ways they're a superpower, instead), my challenges predated the diagnosis by nearly my entire childhood, and I didn't even seek medical help until well into adulthood.

There is nothing novel about living with ADHD, and allowing it to be the next cool kink is borderline offensive to each and every one of us that battles like a muthafugga every single day.

If someone "thinks" they have it, gently suggest they speak to a professional. Normalizing things like this only trivializes the actual experience, and we owe it to each other to honor the struggle we all know too well. I'm all for proper diagnoses, but fuck those that (inadvertently?) see it as some coolness badge to collect.

[–] surewhynotlem 6 points 2 years ago (1 children)

Good news then. You can't both be undiagnosed and taking prescriptions for your diagnosis.

Crisis averted.

[–] Blackstar1886 3 points 2 years ago (1 children)
[–] Mowcherie 6 points 2 years ago* (last edited 2 years ago)

"Sorry to inform you, sir, but there are shit scads of people 'self-medicating'."

Look at any university around exam time. People get desperate and do misinformed/stupid things all the time. Taking unperscribed ADHD meds is not an exception.

[–] tonystark29 22 points 2 years ago (1 children)

According to Andrew Huberman, there is no one trait that can determine ADHD. It's a lot of common traits that occur together.

[–] [email protected] 18 points 2 years ago

I am not a medical professional by any means but my take is, ADHD is also a spectrum and shouldn't be seen as black and white.

[–] [email protected] 21 points 2 years ago (3 children)

That second tweet is a bit concerning, though. Let's not forget that many ADHD meds are addicting to non-ADHD brains.

[–] [email protected] 14 points 2 years ago (1 children)

It does not compute for me that my medication is on a list of "highly addictive substances" in my country yet I actively have to set myself reminders to take it or I will just plain forget lmao

[–] [email protected] 3 points 2 years ago (1 children)

Is it that hard to understand that a brain with a structural impairment will respond to a chemical differently than a brain without that structural impairment?

[–] [email protected] 6 points 2 years ago

uhm.. is the rhetorical concept of hyperbole hard to understand? It's just difficult to imagine based on my experience, that doesn't mean I actually don't understand.

[–] [email protected] 6 points 2 years ago

Fair enough.

[–] beanz 2 points 2 years ago* (last edited 2 years ago)

I think the position in the tweet is sound if you assume a healthcare system that's generally fit for purpose where barriers to potential abuse exist. If you can't then there's most likely other factors in that system contributing to drug dependency more significantly than ADHD diagnoses, like marketing from pharma companies or lower minimum qualifications to prescribe substances with abuse potential etc.

It makes more sense on balance to prioritise addressing the unaddressed mental health disorders in the general public than worrying about opening up avenues for potential drug abuse that aren't currently a big issue. I mean, shit, if addicts all switched to prescriptions, that'd be a win for public health compared to where we are now.

[–] surewhynotlem 19 points 2 years ago (3 children)

It'd be easy to diagnose if we were a little more lax with our prescriptions.

Here, take this Ritalin. Did it make you hyper? Yeah, you're normal. Did it make you fold laundry the same day you washed it? ADHD.

[–] [email protected] 8 points 2 years ago (1 children)

I take meds and I will never fold. Best I can do is actually doing the laundry.

[–] SYLOK_THEAROUSED 2 points 2 years ago

Why is doing laundry so hard! I'm a stay at home dad and doing laundry just feels like such a monumental task! When I finally get around to finishing it there are more loads to do. IT NEVER ENDS! lol

[–] T156 5 points 2 years ago

In theory, but it is equally possible that you might have something else going on that might get worsened by meds (such as if you have ASD co-morbid with ADHD), or that the meds themselves are just a bad fit (maybe you need to try something else).

[–] [email protected] 5 points 2 years ago

It's not quite that specific as a test unfortunately. For example, if a person is having troubles focusing because they're sleep deprived, ritalin will help even if they don't have clinical ADHD.

[–] xargs 16 points 2 years ago (1 children)

Here's my take which no one asked for:

Key things beforehand:

  • ADHD is both overdiagnosed and undiagnosed
  • Underdiagnosis is dogshit, people who need treatment should 100% get it. I hope that those who feel that they have ADHD get a diagnosis and treatment, because we all know the horrible impact of it.
  • ADHD medication in theraputic doses can also calm down neurotypical brains. I see a lot of crap online about "if you take ADHD medication and don't have it, it will make you hyper lol" which is just not true. The effects of ADHD medication do not help with the diagnosis of ADHD. If anything, it will make the person taking the medication **feel **like they are performing better (though studies seem to suggest that this is ultimately because of the increased domamine, and that NT brains actually perform worse).

Unwanted Thoughts: In the effort to break stigma, ADHD has been continuously launched into the spotlight in the past 5 years, namely in social media. The issue is, accuracy over social media is extremely low. For example, in a review of 100 ADHD related TikTok videos, researcher Anthony Yeung found that 52 percent were highly relatable, and misleading. This content has millions and millions of views.

It is not gatekeepy to say that social media is largely misrepresenting ADHD. Myself and the people reading this know the detrimental impact of ADHD on our lives, and so when there's so much misinformation out there about the condition we struggle daily with, it makes me honestly rage.

5 ways you know you have ADHD

  • Picking skin for hours
  • You forget your keys every so often
  • You like listening to the same song over and over.
  • You have issues sleeping at normal times
  • You walk past a tree and pick off a leaf

I shit you not, the above is what I gathered from a few videos currently at the top for the tag ADHD. So what we have now is the most watered down impacts of ADHD like picking up a damn leaf being compared to something that has been massively destructive in our lives. Follow the train a little bit further, and you find videos talking through questionnaires like the DIVA along with what they are testing for.

The issue I have is, all of this absolute garbage honestly, in my view, only hurts us. ADHD has become the ultra-relatable, "oh I think I have that" condition which makes opening up about it to people so damn pointless, if not damaging. When I say ADHD to people, the image they have in their head isn't a DSM-5 definition within the context of having significant impacts in two or more areas of life, but rather a 30 seconds caricature.

I think when people use the phrase gatekeeping, they are missing what is being gatekept. It's not that the person wants people suffering with ADHD symptoms to not reach out for professional support, or that they feel that they want to put the breaks on people getting diagnosed now that they are in the new shiny exclusive club. I feel like it's more that they are trying to protect what ADHD actually is, as when there's images of it being painted online which are vastly different to the experiance that people with ADHD have, it waters down public perspection of the condition and only furthers the sigma attached to the diagnosis.

It's honestly heartbreakingly embarrasing to look through popular ADHD content online unless from good sources, as I cannot help but think that it's this content that is shaping the views and perspection of NT people about ADHD.

TL; DR, if I tell someone that I have ADHD, I don't want them thinking that it means that I can't walk past a tree without picking off a fucking leaf. It's embarrasing. Also, I think social media is causing more people to think they have ADHD, which is because of the image of ADHD presented. I think that this image of ADHD that is being presented, which is more fun, quirky and relatable only serves to hurt us.

[–] Seven 4 points 2 years ago* (last edited 2 years ago)

The drug part is interesting. I guess you really can't just take the easy route of diagnosis...
As for the ADHD respresentation, I blame the discord between nts from few people and charities attempting to represent ADHD and the out-of-touchness of nts for attempting to turn adhd into a "quirky superpower disorder" while it is actually a near-crippling disablity. I can see the good in ADHD, but I classified those under something different, which I dubbed the "extended focus abilities" and those most likely happen, due to the brain having to compansate for the lack of pfc through occipital focus and an overall outside -> inside processing (which might be one of the reasons why ADHD "looks" like autism if you ask me). and of course, adhd can be regarded as something "good" when the hyperfocus is actually rather benefitial (An example is Dream whom most likely hyperfocuses on Minecraft, so obv...).

[–] YourHuckleberry 9 points 2 years ago (1 children)

So many of us are undiagnosed. My mom said I never got treatment because I wasn't disruptive in class. 🤷

[–] Seven 10 points 2 years ago (2 children)

ADHD is both overdiagnosed and underdiagnosed at the same time for me... I blame misinformation and overall confusion regarding ADHD... When I talked about my symptoms to others, a common answer I would get is "common among people" - if my pratically extreme executive dysfunction and lower leg muscle destroying hyperactivity was actually common among people than the global society wouldn't last a week

[–] [email protected] 2 points 2 years ago

"global society wouldn't last a week" part made me giggle (but yeah, same)

[–] Seven 2 points 2 years ago (1 children)

Even with this, I feel like the person is still "gatekeeping" ADHD. I can understand where they are coming from, but there are many undiagnosed adhd people around after all...

[–] [email protected] 2 points 2 years ago

I have ADHD and although she’s not interested in a diagnosis, I’m positive my wife has it.

[–] Ataraxia 6 points 2 years ago

If someone's doctor can be convinced by a patient they have a condition without medical proof I really don't think I'd trust that doctor on anything life threatening.