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It comes from reality
The Institut de Myologie in France is a nonprofit org that funds itself mostly from a yearly telethon and government funding... This would be you
The Nationwide Children's Hospital is a nationally ranked pediatric acute care teaching hospital located in the Southern Orchards neighborhood of Columbus, Ohio. The hospital has 673 pediatric beds and is affiliated with the Ohio State University College of Medicine
See? At least in part, the money for the start up that D the drug, based on the R France publicly provides, came from the Ohio State University which also receives public funding
As always with Capitalism... Socialise the costs, privatize the profits