this post was submitted on 01 Nov 2023
125 points (99.2% liked)

News

23256 readers
4664 users here now

Welcome to the News community!

Rules:

1. Be civil


Attack the argument, not the person. No racism/sexism/bigotry. Good faith argumentation only. This includes accusing another user of being a bot or paid actor. Trolling is uncivil and is grounds for removal and/or a community ban. Do not respond to rule-breaking content; report it and move on.


2. All posts should contain a source (url) that is as reliable and unbiased as possible and must only contain one link.


Obvious right or left wing sources will be removed at the mods discretion. We have an actively updated blocklist, which you can see here: https://lemmy.world/post/2246130 if you feel like any website is missing, contact the mods. Supporting links can be added in comments or posted seperately but not to the post body.


3. No bots, spam or self-promotion.


Only approved bots, which follow the guidelines for bots set by the instance, are allowed.


4. Post titles should be the same as the article used as source.


Posts which titles don’t match the source won’t be removed, but the autoMod will notify you, and if your title misrepresents the original article, the post will be deleted. If the site changed their headline, the bot might still contact you, just ignore it, we won’t delete your post.


5. Only recent news is allowed.


Posts must be news from the most recent 30 days.


6. All posts must be news articles.


No opinion pieces, Listicles, editorials or celebrity gossip is allowed. All posts will be judged on a case-by-case basis.


7. No duplicate posts.


If a source you used was already posted by someone else, the autoMod will leave a message. Please remove your post if the autoMod is correct. If the post that matches your post is very old, we refer you to rule 5.


8. Misinformation is prohibited.


Misinformation / propaganda is strictly prohibited. Any comment or post containing or linking to misinformation will be removed. If you feel that your post has been removed in error, credible sources must be provided.


9. No link shorteners.


The auto mod will contact you if a link shortener is detected, please delete your post if they are right.


10. Don't copy entire article in your post body


For copyright reasons, you are not allowed to copy an entire article into your post body. This is an instance wide rule, that is strictly enforced in this community.

founded 1 year ago
MODERATORS
 

The Food and Drug Administration may be one step closer to what could be the first approval of a drug that uses the groundbreaking gene-editing tool CRISPR.

The drug, called exa-cel, treats sickle cell disease, an inherited blood disorder that affects an estimated 100,000 people in the U.S., most of whom are Black, according to the Centers for Disease Control and Prevention.

The illness causes the body’s red blood cells, usually disk-shaped, to take on a crescent or sickle shape. When that occurs, the cells can clump together, leading to clots and blockages in the blood vessels. That may result in a variety of complications, including excruciating pain, trouble breathing or stroke.

you are viewing a single comment's thread
view the rest of the comments
[–] FlyingSquid 18 points 1 year ago (1 children)

I don't have sickle cell (I'm white so that would be highly unlikely), but I am a chronic pain sufferer, so I have always had a lot of sympathy for other people in chronic pain conditions and, based on the little I know about sickle cell, they reach 10 on the pain scale even more often than I do, which probably results in a lot of suicides. If there's any cure for anyone in pain, I really want them to have it, not just to make them feel better and improve their lives, but to save their lives.

I have seen little, if any, discussion on the role chronic pain can play in suicides, but it's something a lot of us have to struggle with because we see no other way out of feeling pain all the time.

I really hope for my brothers and sisters who have to suffer from this that relief is coming soon.

[–] Icarus512 7 points 1 year ago* (last edited 1 year ago) (1 children)

Heartfelt and earnest response that makes me feel so shitty there isn't anything to help alleviate what ails you. Hopefully you'll get your cure soon enough as well.

[–] FlyingSquid 3 points 1 year ago

I appreciate that, but I honestly care more about them than me. What I have is pretty rare. What they have is far more common. Far more people are suffering. I have medication that helps mitigate the issue and allows me to function basically normally. There are people with sickle cell that can't get out of bed.