Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

Be excellent to each other
Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
No denialism or minimisation This applies challenges faced by chronically ill people.
No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

founded 4 months ago

MODERATORS

mecfs

[email protected]

How do folks here handle the feeling that they're just waiting, not serving a purpose, and being a burden on their family as well. (lemmy.dbzer0.com)

submitted 2 months ago* (last edited 2 months ago) by [email protected] to c/chronicillness

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I wake up, I eat, I read a little, I go back to sleep. I wake up, I eat, I read a little, watch a show with my wife, go back to sleep. I try not to eat more than 1500 calories because my activity level is so low I'll get fat if I go above that.

What's the end game here?

EDIT, FOR CLARITY:

I can't work. I need to sleep like 14 hours a day. I'm exhausted all the time. I get fatigued after about 5 to 10 minutes worth of any labor, including things like going upstairs or loading a dishwasher. My hands shake all the time, to where I can almost not clip my own fingernails anymore.

I work a job for years and retired from it there's plenty of money coming in. I just find myself in a place now where this chronic, undefined illness has taken over my life.

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[–] Olgratin_Magmatoe 3 points 1 month ago (1 children)

My girlfriend and I are in a similar boat, but she is the one that is chronically ill. So I can say from the caregiver's side of things, it isn't a problem. I'm happy to help make sure my girlfriend is able to get through the day, and I don't see her as a burden.

I'm sure you've already talked to your wife about it, but if you haven't you absolutely should. There is no guarantee that they see you as a burden.

I hope the feelings you're experiencing get better.

[–] [email protected] 2 points 1 month ago

We do talk a lot and she, like you, is a caring partner who loves me and doesn't see me as a burden. She is also transparent about how hard it is at times. It's strange to comfort her over something that is caused by a problem I have.

So much conflicting emotion.