this post was submitted on 17 Oct 2024
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For you to help your friend. Or for your friend themselves?
For me to be a better friend by better understanding his new limitations...
He already has a good support network, they organised a fundraiser to get him an electric wheelchair, which is awesome! But at first I didn't understand why it was helping him, because I don't know enough about the condition. 🫣
This channel has a bunch of short (5 mins long videos) about ME to educate people.
There’s also a slightly outdated (but still worth the watch) oscar nominated documentary about it, which has been made free and put on youtube recently It’s Unrest by Jennifer Brea
One of my patients also runs this excellent website with a bunch of resources about the disease.
Nice! Thank you so much!
if youve got to any, could you tell me what you think? It’s always useful to know what I should recommend to my patients to show their friends and family.
I'm mostly a "wikipedia reader" type of person, so I don't have good pop sci sources to recommend... Sorry!