this post was submitted on 30 Sep 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

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I've been chronically ill my whole life. My job was very accommodating while I searched for actual answers. This is the first job I've had where I can actually take time to care for myself without getting in trouble.

Anyway, I finally got an answer to what my illness is after desperately searching for 20 years. I have lupus, specifically SLE. I always suspected it, but rheumatologists never took me seriously until now. I have to make a 2 hour trip, one way, to see my doctor, but it's worth it.

I sat down with my boss after getting my diagnosis and discussed how the disease could potentially impact my life and working ability. I discussed every important aspect of it so my boss and I are on the same page. He was so supportive and kind and I cried because it is so amazing to be supported like that in the workplace.

I truly hope the rest of you can find/have an employer like mine.

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[–] Jf2540 9 points 1 month ago (1 children)

I'm so happy to read this. I'm so glad you have an awesome workplace.

[–] LaunchesKayaks 6 points 1 month ago