Chronic Illness
A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for people to spout their opinions on disability.
Rules
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Be excellent to each other
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Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
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No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
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No denialism or minimisation This applies challenges faced by chronically ill people.
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No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
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See a doctor.
Seriously. They can help. Not all of them, and they can be a real barrier to getting the help you need. And it takes time to work through them.
I had one asshole actually tell me "well I guess you're gonna have to learn to live with it". I'm lucky to not be in jail, I came very close to knocking that doctor's head off.
Now I have a moderately sympathetic doc, I've learned how he views things, and the way I have to present information so he can justify the treatments and meds he prescribes.
I second this. OP, you say you're mistrustful of doctors. That impulse isn't necessarily a bad thing! Doctors are people, and sometimes people ain't shit. If you meet one that sucks & just tells you some variation of "deal with it", you are well within your rights to tell them to pound sand & find a different doctor. It can be discouraging when the first / first few you see suck ass, but the right doctor can make a huge difference.
Exactly. Some suck. Some are assholes. Some are having a bad day.
As a consultant, I've been all of these to my clients at one time or another (well, I hope I don't just suck). I've misunderstood them. I've made mistakes. Doctors are no exception.
Then there's personality - you gotta figure out how to communicate with each person, not really any different than at work.