this post was submitted on 26 May 2024
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[–] [email protected] 8 points 5 months ago (1 children)

I’ve never heard it called “bad tension” but I have POTS (postural orthostatic tachycardia syndrome) which fits your symptoms. I can’t maintain my blood pressure when I stand still (or if I get too hot, bend down, lift my arms over my head, eat a big meal…) my heart rate skyrockets to try to compensate and I ultimately faint.

I was diagnosed in 2012 and they’re still tweaking my medication to try and get it right. For most people it starts in their teenage years and they “outgrow” it within 5 years. For me it’s second to moderately severe Ehlers Danlos Syndrome, there’s no outgrowing it. I can’t go anywhere that requires more than a short walk from the car to a seat - queues are literally my enemy - so I use a wheelchair. The amount of dirty looks I get when I get out of my wheelchair to move to a more comfortable seat, or to go to the toilet etc are awful! Not only are a lot of disabilities invisible but not everyone who uses a wheelchair can’t walk at all. Grrrr!

[–] [email protected] 2 points 5 months ago

Yeah, that's it. I was diagnosed when it was still a very recently discovered condition (well...It still kind of is...). As a result, I have some secondary effects from "novel" treatments my parents tried.