Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

Be excellent to each other
Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
No denialism or minimisation This applies challenges faced by chronically ill people.
No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

founded 6 months ago

MODERATORS

mecfs

[email protected]

106

(Also becoming disabled sucks, in big part due to society barely helping) (lemmy.blahaj.zone)

submitted 3 weeks ago* (last edited 3 weeks ago) by [email protected] to c/chronicillness

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[–] [email protected] 7 points 3 weeks ago

My dad is finally dealing with becoming himself disabled. He has pains and breathing problems and stuff (copd, went through cancer treatment last year), and it’s made him wildly depressed.

So I told him.. you know, I’ve been dealing with disability that drastically impacts my life since I was barely in my teens. Here’s a few strategies to manage some of the emotional toll it takes on you, but you really should do the things the doctors tell you to because they make it easier to deal with the conditions that are part of your life now.. trust me, do them. I’ve been physically disabled most of my life, and know how much that stuff helps. You at least made it into your 70s before it started.. chalk that up as a win.

He won’t do the exercises, he won’t use the oxygen, he sleeps all but a few hours a day, and is just totally checked out.. all because he’s old. So dumb. All the tools he’s been given would make him feel better and improve the quality of his life, instead he’s actively reducing both quality and quantity of remaining life..

[–] [email protected] 3 points 3 weeks ago (1 children)

Instead of thinking in terms of dis-ability, perhaps think in terms like temporarily abled.

[–] [email protected] 5 points 3 weeks ago

As they say, disability is one of the few minority groups nearly everyone becomes at one point in their life.

[–] [email protected] 2 points 3 weeks ago

Frankly true, it's a huge detriment and I can't help but feel bad or at least fear being in their position

[–] [email protected] -3 points 3 weeks ago

Problem is there are two type of folks of our society. One has some ability to get that something can happen to them and that even if not we all live together and having other all folks live a decent life makes all of our lives better. The other thinks in levels and they think their level is innate to them and other people are meant to be in theirs. right up to the point were they have need and then they are finally on board.