Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

Be excellent to each other
Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
No denialism or minimisation This applies challenges faced by chronically ill people.
No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

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founded 5 months ago

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Doing Harm: How The Remnants of “Hysteria” Impact Chronically Ill People (rootedinrights.org)

submitted 1 week ago* (last edited 1 week ago) by [email protected] to c/chronicillness

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The word “hysteria” inherently evokes misogyny. Deriving from the Greek word for “uterus,” it was used in ancient Greece as a diagnostic label for women with symptoms ranging from dizziness to paralysis and menstrual pain—all of which were attributed to a “wandering womb.” Throughout history, the label was given to women who were perceived as unreasonably ambitious, attention-seeking, neurotic, or sexually dissatisfied. In Freudian times, it eventually evolved to refer to a mental disorder thought to primarily affect women, causing physical manifestations.

In an age of medical advancement and greater attention to gender equity, most of us would consider this gendered catch-all diagnosis for unexplained ailments to be unthinkable. But chronically ill people of marginalized gender identities, and just about anyone with a chronic health condition that disproportionately affects women, can attest that modern medicine hasn’t progressed as far beyond the hysteria diagnosis as one might expect.

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[–] [email protected] 10 points 1 week ago

Thought this passage was especially well written

These mislabellings are harmful, not because there is anything shameful about the possibility that someone could be living with a psychological condition. Rather, what is shameful is that women and other people of marginalized gender identities are still treated as unreliable reporters on our own bodies. It is harmful because this gendered misdiagnosis obstructs access to necessary medical care, disincentivizes biomedical research on certain diseases, and even prevents us from seeking support for comorbid mental health symptoms out of concern that doing so could further damage our credibility.

[–] [email protected] 10 points 1 week ago

Yeah, I had an endocrine tumour that was really fucking me up and it took 4 years until I got a proper diagnosis and not just "it's anxiety", "it's panic attacks" because some of the symptoms were things like tremor, sweating, weight loss, fast pulse, nervousness, insomnia etc. (some of you can probably guess where the tumor was.)

Shit, even after the tumor was found many if not most doctors attributed my symptoms to anxiety, even fucking endocrinologists.