I went through 15 rounds of antibiotics 1 to 4 bottles per month of various kinds to not become resistant 2 years ago fighting sibo. It nearly killed me and altered my body in horrible ways. I was losing weight so rapidly 2 to 4 pounds a week the doctors gave me 4 to 8 weeks to live before my organs would be shutting down. I'm doing slightly better on that front sibo is gone. But something in my body is wildly off since and its breaking me down to the point of not being able to function anymore.

I have a neurologist on my list of Drs I'll be calling tomorrow. I keep a strict food log. I'm highly knowledgable in manufacturing processes and cross contamination factors. I trial and error one new food per day. Too many days if being sick I have to take a break. Although I'm pretty intolerant to nearly all foods. My migraines seem to triggered from dehydration, or food reaction not allergy but I'm guessing chronic massive inflammation, I had a recent surgery and the surgeon said my body has a massive inflammatory reponse which resulted in major swelling even on 10mg prednisone for 3 weeks. My aura comes then my brain starts burning. My eyes pulse. Severe nausea. Rapid dehydration. They last for days slowly winding down once a severe migraine hits. Usually when I wake up after not drinking during the night if I make it that long. I'm constantly on the edge of one unless I'm drinking water or electrolytes in high quantity.

I've moved completely hours away from where I have been for last 4 years. I only have reactions when I ingest something such as food or drink. I've considered all environmental factors inside and out. Air purifier in my room, pH balanced water. Seperate cooking equipment as in only my own cleaned thoroughly and silverware rinsed during use nothing touching unclean surfaces or its discarded or rinsed. Single utensils and dishes repeatedly washed and reused. Foil for disposable cooking surfaces like oven. One of my organs isn't functioning right or my immune system is causing a reaction to nearly all foods. I've tried probiotics such as Kefir. Medications of various kinds I'm even considering immuno-suppresants which are a devils bargain. Different Supplements and gotten all my vitamin levels checked alongside daily multi. Liver panel done for various conditions and metabolic panel. Its like my immune system is giving me a Celiac symptoms but from GF foods. Even foods I used to consider safe for times of severe sickness. Its as if my body is completely rejecting almost all foods. I only drink water, body armours, drip drop packets in water. No other drinks.

I have read about it online histamine intolerance as well as sulfite intolerance. I'm not sure what foods to test these. I will look online and make a list then try some if them soon as I can. I will report back. I only consider info from reputable sources I'm no fool in researching online. I'm not a Google Dr.

Thank you for the detailed post. I just woke up and have to get moving. I will respond within and hour or two. Thanks for throwing stuff at the wall I'm willing to investigate anything. I've had 5 or more EGDs and Colonoscopies over the last 8 years. I can at least check off foreign object. I will be back to this comment.

I've been tested for H. pylori multiple times its negative thankfully. I still have my appendix I have no idea in the bacteria side though I've had a ton of fecal tests all the Drs usually test for the common things. Nobody wants to or likely has the time to for a severe case to deep dive into them so they get pushed to the side and keep the money flowing. I have been looking into doing FMT or fecal transplant but it's only approved for Pylori resistance. So it would have to be done on my own accord and what worries me is I have someone healthy around my age that would do it but if they carry any sort of pathogen for instance e-coli or anything and transmit it to me. Well it likely wouldn't be good I have researched the process for how to do it but I'm just weary of the dangers. I really don't have much to lose honestly I'm at that point.

As for the other system issues I've wonder if its liver, bile acid issue either transport or through liver or gallbladder production or release as my liver levels are always elevated, gallbladder malfunction, pancreas enzymes are functioning as they should according to my labs. I have no idea how to test for nervous system issues, hormone issues, thyroids good had it tested, digestive juices I'm guessing falls under a GI360 map? I have been considering doing that to test for what bacteria's are inside my intestines. The more diverse the better if their good, I been trying to diversify my diet but its so hard being so severly malnourished and sick. If you know of tests to do to rule out some of your ideas I'm all ears and will note them down.

I didn't know such a test existed I'm open to all tests and ideas. I will take note of this and get one ordered, if you have any questions or info I may not know by all means ask or speak up.

I tend to notice my symptoms at least the onset fairly quickly within an hour of ingestion but it does seem like it can take days sometimes to notice or even recover from a single bad meal. I used to bounce back quick in about 2 days or so now it takes atleast a week. I've been on an elimination diet for longer than I can remember. I started from one food item per day and rebuilt my diet from the ground up. But since moving all my usual grocery stores are no longer nearby so my diet has had to change, don't even get me started on how high the prices are. For instance different brands and thus ingredients have changed. As you might know sticking to certain brands and food items is vital.

Its called a lactilose manitol test and I have had it. My entire state didn't have the equipment. I had to go to another state to get it done. I tested positive on the first bag. The second was higher and by the 3rd they knew based in the results so far I had it. Though I finished the test. Over the course of time my GI specialists only knew to prescribe antibiotics. When they didn't know how to fight it they referred me to another GI specialist. Which is why I went to 3 different ones and so many bottles of antibiotics. I was on 2 for 2 weeks then switched to 2 different ones for another 2 weeks. Did that for 15 rounds over a year and half. Sibo is wildly not understood. Not even recognized as an issue. Most diagnose it as IBS. Which is just not true. If you've had SIBO then you'd know IBS is not SIBO. Its scary and cruel to face it. Its what nearly killed me. They gave me 4 to 8 weeks to live. I still don't know how I survived.

I've recently been incorporating higher salt into my diet as in this week. I don't usually add any table salt or pepper or sauces or spices to my foods. I eat a miserable bland yet super healthy diet. Fresh Greens, fresh fruits, low carb, low fat, higher protein diet. I've switched from body armours to Drip drop packets yesterday. It took 4 drip drop packets throughout the day to even remotely keep me hydrated. Urine will be clear but I'll be dying of thirst, nauseated horribly, brain burning, head feels like my brains inflamed, urine panel came back good. No medications are to blame. Mostly as needed meds. Body armours used to do good for last few years. Now I need something stronger and I don't know why.

I will look into this! I believe you mean the pain medicine dilaudid please clarify? And the second medicine I believe is similar to bentyl also called dycyclomine which I have for intestinal spasming. I wish your wife the best truly. I'm in the hospital far too often. I will be noting and looking into naltrexone. Thank you for mentioning.

Edit. It appears naltrexone is an opiate addiction medicine which would make sense why she would have wanted pain medicine dilaudid. I cannot even take pain meds OTC or prescribed. The number one side effect is nause, headache. Perhaps I misunderstood. Clarify if you could please.