this post was submitted on 05 Dec 2023
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23andMe confirms hackers stole ancestry data on 6.9 million users::Genetic testing company 23andMe revealed that its data breach was much worse than previously reported, hitting about half of its total customers.

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[–] [email protected] 21 points 1 year ago* (last edited 1 year ago) (2 children)

My mother had breast cancer. I couldn't get a test to see if it was the inheritable one because then I would have to disclose it as pre-existing for the rest of my life. (For the record my mom took the genetic test and it was negative).

This is just one example.

What if in future, your insurance price depended on an inheritable diseases DNA clearance. You could refuse but then it would be $$$$$. What if my life insurance refused to pay upon my death because I had knowledge of a gene that causes cancer when I took out the policy?

PS not American.

[–] AliasAKA 8 points 1 year ago

They’ll almost surely attempt this, but it will be much less clear cut on it. There’s federal law against discriminating on the basis of genetics, so they can’t explicitly charge more for it.

But you better believe it’ll be a component in a deep learning insurance adjustment model that charges you more and just tells you the model says so — I’d expect this to occur and a court case to happen.

[–] [email protected] -3 points 1 year ago

That's a situation for a government program, not insurance. Insurance is for situations where it's unlikely that you'll need a payout.

Of course people today have to deal with the systems we have, but I'm talking about your hypothetical "future" scenario.