Chronic Illness
A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for people to spout their opinions on disability.
Rules
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Be excellent to each other
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Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
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No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
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No denialism or minimisation This applies challenges faced by chronically ill people.
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No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
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I know I should.
I even live in France where we have a pretty good healthcare system (very commie but the neolibs are trying to sell it piece by piece).
But still navigating healthcare as an autistic, trans, and handicapped lass is pretty scary and rough.
sorry to hear….
for me it’s:
go to primary care physician (main doc), tell of pains and ask for referral, then go to the PT place they referred me to….
but don’t worry, musk will be deleting my healthcare soon….
(btw, probably good to write out a list to tell the doctor, because i always forget when im actually talking to them… ).
also, if you’re french why do you call yourself a “lass”?
seems like you mixed up Irish and French…
Afaik lad/lass is more used in Scotland/Northern Ireland than Ireland.
I like slangs in foreign languages. Not being a native speaker lets me chose which ones I like and want to use.
There might be some exposure bias too. I've got a halfway decent accent but it sounds like the weirdest lovechild between Southern Scotland and US midwestern :p
Healthcare wise I got a great endocrinologist and psychiatrist but alas no primary care physician. I dread meeting new doctors because I often feel like they don't listen to me.
Almost every first appointment is "could it be related to your HRT" whatever I come for. Migraines? HRT! Psoriasis? HRT! Injured? believe it or not: HRT!
Specifically for pains I get so much "it must be your posture" and "probably psychosomatic". Yeah sure the posture of sleeping straight on my back on a good mattress. Also ofc stress plays into it but could you please search a bit further into it? :c
Sorry for the rant ^^`
no, i can relate… last time i went to the doc he was interested in what i was there for, and tried to be my unlicensed therapist… literally, not figuratively, he wanted to have therapy sessions….
my psychiatrist thought that was a bad idea for a number of reasons….
(and now my next argument with a troll will bring this up).
actually i was in there for some back pain and some other stuff and he was disinterested, but did refer me to PT….
he had started therapy himself, due to an existential crisis dealing with covid and trump as a doctor…
i know what it’s like to have some social anxiety, and a specific phobia of doctors and hospitals (childhood stuff)… but it’s worth it because they have some very counterintuitive exercises to target specific areas that are worth learning….
maybe start with some history of injury that led to the pain before talking about it?
i’ve found it’s useful to mention i don’t want pain medication and will refuse it, because they like to assume weird people are drug addicts when they talk about pain.