this post was submitted on 17 Sep 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

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[–] [email protected] 9 points 2 months ago

Not only am I in pain, I'm also feeling guilty about it and the fact that I'm resting so much. I really try not to, but it's almost impossible.

Mornings are the worst for me and I still feel half dead even after 10 hours of sleep (or more). I need about one or two hours to even be half awake. It's hard to open my eyes at first, let alone move. So I begin my day at noon and end it at 5pm or so. And I need breaks too, can't skip those.

This also limits my ability to get better, as I often don't have the energy to go to all of my doctors appointments. I force myself to go for a walk and do the exercises for my back, but everything where I have to leave the house for more than 30 minutes is difficult and often impossible.

For me, the worst part is, that I can't sit. I can do it 5 to 10 minutes and then the pain ramps up. You can't do shit without sitting.