Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

Rules

Be excellent to each other
Absolutely no ableism.
No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
No denying or minimising challenges faced by chronically ill people. This is a support group, not a place for people to spout their opinions on disability.

founded 3 months ago

MODERATORS

mecfs

[email protected]

809

Let's put her on saline & discharge right away (files.mastodon.social)

submitted 3 months ago* (last edited 3 months ago) by [email protected] to c/chronicillness

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discharge = discharge from hospital

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[–] [email protected] 31 points 3 months ago

My wife has Endo, and many doctors failed to diagnose it. One even told her she couldn’t possibly have it, because it is a “complicated disease” (okay…? How does that mean she doesn’t have it, dumbass?).

Finally went to some fancy, private practitioner dude that is well known for his study in Endo. He did a simple pelvic exam and said rather casually “yep you have Endometriosis. It felt like you have rocks in your vagina”. APPARENTLY IT WAS SO BAD IT COULD BE FELT, BUT OTHER DOCTORS WERE TOO INCOMPETENT TO NOTICE.

Really lost a lot of respect for the average doctor after that.