ADHD Women

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A community for women to find support and discuss living with ADHD.

founded 2 years ago
MODERATORS
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As requested, let's be human and check in with each other.

How in the hell are you? What did the last week bring? What are you looking (or not looking ) forward to this week? Any rants or raves?

Discussion can be about ADHD or off-topic: This is your canvas, ladies!

As I am not a mod of this community, I do not have the capacity to pin this post. I plan on making a post on Sundays where we can check in throughout the week as needed.

Please let me know if there is a better way of doing this - any ideas are welcome :). Grateful to be a part of this community.

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Are your goals too high? When you explained your job to me…” the psychologist trailed off. I knew where this was going. I was here after six visits to the GP in two years, all for unexplained exhaustion. Burnout, I guessed. Whatever that means.

It felt like my brain had been tossed into a washing machine, and all of the delicate bits that made it sparkle had dissolved. Everything took three times longer than it should have. Somehow, over the past few years, my already-frayed cognitive controls had just … evaporated. “I can’t keep it up any more,” I said wearily. “It” being life. I wasn’t suicidal; I was chronically overwhelmed.

The psychologist tightened her lips. “You know many women in your industry put pressure on themselves to be perfect.”

My eyes began to sting. I had a lot on, but it wasn’t anything someone with my experience shouldn’t be able to handle – I just needed someone to show me how. “There are women out there my age running the world! All I’m trying to do is send a few emails, keep my house clean, be creative and still have free time! I’m not curing cancer or raising a family. I am just trying to live.” I’d always been chaotic, but this was a new level.

The session, I can say with full confidence, was a failure. I left the psychologist’s office with zero helpful tools and as much hope. I had known depression. This wasn’t it. Stress? Anxiety? Sure. But these were byproducts, not the cause. What is wrong with me? As soon as I got home, I collapsed on to the floor and tucked my limbs under myself into a ball – which I did often. How does everyone else cope with life?

It would be another burnout, two more doctors, a blood test, a hormone test, a three-month wait to see a psychiatrist and another year-and-a-half before I had an answer. It turned out, like many women in their 30s, I had been masking severe ADHD my entire life. And like so many more, I had no clue what that meant.

Attention deficit hyperactive disorder is a condition that presents at first in childhood but often goes undiagnosed. In Australia, it affects approximately 814,500 people and around five to 7.1% of the population globally. Despite the name, ADHD doesn’t exactly result in a “deficit” of attention, but more an issue regulating it, making it harder to plan, prioritise, avoid impulses, remember things and focus.

On a good day, it’s like watching a train whizz past you while you’re trying to read the text on the side and make out faces in the windows. On a bad, a bird might land in front of you. Curious, you pull out your phone, Google the bird and get stuck in a “pigeons of the world” vortex.

You discover cassowary eggs are bright green and in 2005, UK police found a leg of swan in the Queen’s Master of Music’s freezer. Two terrine recipes later, the train has long passed and night has fallen. Dazed, you sink under a dark cloud of self-loathing, lamenting another lost day. You don’t remember what kind of bird it was.

The default assumption about ADHD is that it’s what makes little boys disruptive. But it can also make little girls feel like they’ll never be good enough. Statistics have traditionally shown ADHD is more prevalent in males, but recent research suggests this could, in part, be due to misdiagnosis. Unsurprisingly, ADHD in women is hugely under-researched – females weren’t even adequately included in findings until the late 90s. And it wasn’t until 2002 that we got our own long-term study.

ADHD presents differently in girls and boys too. Women are more likely to have inattentive ADHD, rather than the more observable impulsive type. Because of society’s gender norms, girls with ADHD are often dismissed as “daydreamers” and “overly sensitive”, as if we are a romantic, quirky caricature from a John Green novel or the Disney Princess canon.

The frequency of zone-outs, disassociations and meltdowns caused by our hidden internal restlessness and our brain’s inability to regulate information and emotion goes unnoticed. The cherry on top is that girls who do suffer from impulsivity are often palmed off as “tomboys”. As a child who was prone to inattentiveness and impulsivity, I was repeatedly told to “stop daydreaming”, “slow down”, “hurry up” and “act like a lady.” Overwhelmed by the world, it wouldn’t take much for my cup to runneth over or for me to completely disassociate – I got very good at both.

There are many women like me: “lost girls”, so we’ve been called. Chaotic and curious, sometimes we feel like superheroes; other times, super-failures. It’s not always a lack of interest that makes it hard for us to process information, but our brain’s desire to absorb so much of it. We are jacks of many trades, purveyors of information, collectors of hobbies, beginners of tasks and finishers of few. And we all have similar stories of missed red flags that haunt us.

When I was nine, my teacher told my parents I was all over the place. I already had the energy for five dance classes a week, netball, French lessons, piano lessons, a book club and school band. However, she thought I still didn’t have enough channels for my “creativity” and suggested they enroll me in drama school as well, so they did. Did it help me focus? Of course not.

Neurodivergent women often slip through the cracks of diagnosis because they can appear smart or gifted. This is because we’re more likely to be perfectionists or suffer from low self-esteem, so we work extra hard to prove ourselves (see also: my burnout). Combined with hyperfocus – the flipside of the attention coin where one zones in on a single interest for hours – this results in flashes of brilliance.

We’re also experts at masking symptoms. We form habits by mirroring the social behaviours of those around us. You think imposter syndrome sucks? Try keeping it together when your brain is a wind-up puppy doing backflips while singing the chorus of Ricky Martin’s The Cup of Life – for no apparent reason. And don’t ask what the obstacles involved in dating or starting new relationships might be!

As I discovered, burnout is what happens when the mask slips. Your entire world comes crashing down, and you don’t have the executive function to figure out which way is up. ADHD adults take an extra 16 days of absence a year, according to a report by the Australian ADHD Professionals Association, so while it certainly makes life interesting, it is a rollercoaster for your REM sleep patterns.

According to the Under the Radar Report, released 25 October by ADHD Australia, there is a lack of education and understanding around the condition. The pandemic has caused ADHD children to feel swamped by the struggles of at-home learning, and adults like me are burning out. Anxiety in those with ADHD is skyrocketing, with 52.4% of children and 64.7% of adults reporting an increase. Keep in mind, neurodivergent conditions often co-present with other mental health disorders, so the scales are already tipped. “It’s been a living hell with no escape or support, I’m mentally exhausted,” a parent of an ADHD child is quoted as saying in the report.

Alas, if there ever was a time where neurotypical people could relate to the anguish of fuzzy focus, it’s now. That absence of motivation and productivity you’re feeling from stress? It’s not far off. The chaos of the pandemic has activated everyone’s fight or flight response and time-blindness.

The new normal sees us assaulted by a relentlessness stream of backlit information stained with emotion and outrage. Anxiety is high. Stunned by stimulation, suddenly it’s harder than ever to silence the background noise. Blend all this with the pressures of attempting to work at a regular pace in an irregular environment, without allowing room for adjustment, and you’ve almost got an ADHD tasting plate.

Seven months on, my diagnosis has become something of a bereavement – I’ve cycled through many stages of grief. I am comfortable with my chaos and relieved I now have answers and an arsenal of tools to prevent me from falling into a hole again. But I keep thinking about all the other lost girls out there. I find myself angry and sad, mourning on behalf of my younger self.

I mourn the unnecessary pressure and all the times the world was too loud, bright or grotesque. I mourn the things she forgot, the skills she could have learned and the relationships her impulsivity, perceived detachment and unhealthy coping mechanisms sabotaged. But most of all, I mourn time lost. Because even though my neurodiversity has sometimes made me the loudest person in a room, because I was a woman, nobody noticed.

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submitted 1 year ago by ickplant to c/adhdwomen
 
 

I hadn't taken my meds yet, and it was generally a foggy brain morning. I was already trying to decide what to do with the day when my husband asked.

Ladies, I seriously damn near cried cause I didn't know what to say and my brain went "MEEP!"

Thankfully, my husband recognizes these moments and reassured me I had all the time in the world to decide and gave me options, which was helpful.

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It's a party (lemmy.world)
submitted 1 year ago by ickplant to c/adhdwomen
 
 
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For me, it's definitely trying to keep from moving too much/fidgeting. In my job, I have to sit still in front of another person for hours at a time, and I have to do my best to be grounded and present.

If I don't take my meds, I am exhausted by the end f the day from this particular masking strategy. Some of the others I use, like slowing down my speech, take little effort after years of doing it.

I feel like all of my energy has to go somewhere, so I try to dance and move around during my breaks and before/after work.

What masking strategies take the most out of you?

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My game after diagnosis, is how many I can not cross off to win my bingos.

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I was browsing my list of communities and realized I haven't heard anything from this one for a while. I really treasure hearing from other women with ADHD and knowing I am not alone.

What can we do to bring more life to this community? What would you like to see more of? Memes? Articles? Check-ins? Something else?

I know we are limited by Lemmy's small userbase, but we can still have a small thriving community.

Let's brainstorm together :) Appreciate all of your ideas!

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submitted 1 year ago* (last edited 1 year ago) by tracerous to c/adhdwomen
 
 

I have terrible skin and have always wanted to follow a basic skincare routine, but thanks to ADHD I am lucky if I remember to even splash water on my face in the morning. Usually I will buy a product, use it a few times, then get bored of it and forget it exists. So I'm curious, what are your skincare routines like? How did you get them started? Are there specific products or types of products that make it easier?

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submitted 1 year ago* (last edited 1 year ago) by idiomaddict to c/adhdwomen
 
 

Hi, I’m in a classic college crunch, even though I’m fucking 32 and getting my master’s. I have a paper due yesterday and no extension, but I’m hoping they don’t check the mailbox until Monday.

Onto the problem: I’m exhausted and fried from too much stress and weed, and too little food and sleep (zero hunger though, plus I’m puking from stress, so… I’m eating soup when I can and starting with good breakfasts). I have to write, but I can’t think because I’m so tired. I can’t sleep because I’m so stressed. I can’t calm down, because I haven’t written the paper. Weed ostensibly helps with the first two but very much not with the third one.

I wrote two sentences (the first two in the introduction) in 35 minutes, so trying to push through is… inefficient. What do I do?

Edit: I have already discussed and agreed with my fiancé, we’re not buying any more weed at least until I’m done with my studies, so no worries there.

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I could use some advice or support.

My husband and I both have ADHD. We really struggle to keep up with cleaning our home. My parents weren't great cleaners when I was a kid either, so I get stressed sometimes because I don't know how to handle various things around our home.

My husband told me a couple weeks ago that his mom was over at our house, and she told him we "don't deserve to be homeowners." This comment really cut me to the core. I have a pretty good relationship with my MIL overall which is what makes it hurt that much worse. But she is an insanely clean person, and she really can't stand any kind of mess. I try to remind myself of this, that her standards are really high. I keep hearing that comment in my head and I feel like a piece of shit.

I really want to clean up my house but I have so much shame around it that it's so hard to motivate myself to do it. It's not like I live in a hoarder house or anything... But my house is messy enough that I am embarrassed to have people over most or the time.

Just needed to vent a little. Thanks for reading.

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Im official (self.adhdwomen)
submitted 1 year ago by pixel_witch to c/adhdwomen
 
 

I was so worried about the test showing that I wasn't ADHD but instead a lazy pos. Turns out I do have ADHD and my mom was right. Owe her an apology and working on the best way to do that (I'm thinking a coffee date)

Anyway I am relieved I feel better knowing that I have a reason I struggle and it is because of me but things that are partially out of control. Now to work on the things I can control and actually make progress.

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submitted 1 year ago* (last edited 1 year ago) by blueskiesoc to c/adhdwomen
 
 

Whenever I go to the doctor's office and they ask about something that happened unrelated to that day's visit, I can't seem to remember.

Examples:

At one appt, "So have you had any more troubles from your sinus infection that we saw you for 9 months ago?" Oh yeah...I had a sinus infection.

At a different appt, "You had your eye surgery in a different network. Let's update your record in our network. Who was the surgeon and when was it?" Um, it was a guy...and it was, I think, three years ago. (I looked up the surgeon's name online based on where I remember the surgery center to be and called and the surgery was a hair over a year ago.) That sounds like an extreme example because the surgery was a big deal, but yeah.

Often I can't seem to recall any of the original symptoms that led me to taking a medicine.

It's like medical amnesia. They have everything in their notes, but I've got zilch. It's really frustrating.

I've considered writing everything down, but once I'm out the door, that idea seems to vanish.

I've learned to take in a very full description of what's currently going on because I know I'll draw a blank when the doc asks of the specifics on why I'm in that time. I feel like a weirdo with a printout. If only I could remember to hang onto that printout for future reference. Ugh.

I'm not dumb and I'm not like this with other things. It's weird and I'm wondering if it's just me.

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submitted 1 year ago* (last edited 1 year ago) by pixel_witch to c/adhdwomen
 
 

My pysch wants me to get a tova and liver blood work done before prescribing stimulants. I have never done the ToVA it seems like a relatively short test. A cursory search so it's accuracy is below 90% which worries me. What worries me even more is what if it shows I don't have ADHD and I am secretly just a terrible lazy person.

Anyone care to share their experiences?

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My partner of one year has not been satisfied with our communication while away from each other. He'd like to know what I'm up to when not at work, and while I would rather have more sporadic catch-ups (say 2/3 times a day) I try to keep to his preferred frequency which usually ends up being once every two hours at minimum, because I know it's important to him.

He's currently visiting family outside the country for a month, and while away, and I've had several instances of not getting back to him - once for 5 hours when I was having a bad mental health day, which we argued about and then managed to come to terms with. And another time for 3 hours because I got sucked down a YouTube/research hole. These pauses in our conversation never actually felt that long to me cause I definitely get time blindness. I apologised and tried to explain about time blindness, but I don't really think he believes me.

The conversation about the second instance ended on a sour note. Since then we've still been texting and updating each other on our goings-on, but I now feel anxiety when I see any messages coming from him, and like I have an invisible timer to answer by otherwise things will blow up again. And while I used to put real thought into my messages (maybe too much) I now feel like I'm chucking any information I can think of at him to keep him appeased.

I know getting back to people on a social level is an issue with me - it's been a problem with friends in the past and it's something I'm trying to work on, but I feel like I have no method for getting back to my partner. I'm in my thirties and feel like I should have figured this out by now - not great for the self-confidence.

I'd love any tips for managing social communication with people or indeed any other input. Please be kind, I'm being pretty hard on myself right now already.

UPDATE: Thank you to everyone who commented, I didn't reply individually but I can promise you I read and took on board everything that was said. In honour of that, I thought I'd provide an update for anyone curious.

He came back from his trip and we had a talk, which led to us breaking up. Although he initiated the break up, and there were many elements to it, I think the fact that he was sort of hung up on his side of the story and his feelings of rejection over any desire to understand me or figure out a way for us both to work things out, kind of cements the fact that separating was the right thing to do. I've taken some time to heal, and will be keeping an eye out for this sort of thing in the future. Thanks again to all, I appreciate your time and concern!

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Does anyone find that they have an especially difficult period, mentally and emotionally compared to neurotypical women you know? Have you found anything that helps? Have you noticed a difference medicated for ADHD vs not medicated?

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Current example: I'm tidying my home for a sleepover guest and my dining table has all of the hand tools from the garage and wherever else I had tucked them away. I'm cleaning them, removing rust, oiling them to prevent future rusting, and organizing them. They weren't on the table two days ago, but IT HAD TO BE DONE.

I feel driven to put off one thing that must be done--has to be done--in favor of something that has zero urgency at all.

I know that's a thing, so if you do that too, let's share.

I think it's helpful because the more I learn about what I have in common with other ADHDers, the more patience I give myself. I'd like others to learn to give themselves a break too.

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Every time a song goes on, I can't focus on anything else because I feel the lyrics going into my brain and replacing my thoughts with other words. Especially if I'm trying to do homework or coding. So because of this, I only listen to classical music or the instrumental tracks of modern songs I do like. My sister thinks it's weird. I only listen to lyrical songs if I want to sing them (theatre kid)

Does anyone else relate?

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When I am cooking, I have trained myself to set a timer for 10 minutes.

My rule for cooking is "don't leave the kitchen", but that isn't realistic. I wander without realizing. It's an issue. I've been in another room and the timer has gone off and I'm like,"Oh fuck!". I completely spaced it.

Anyway, when the timer goes, I set another timer for 10 minutes. Rinse and repeat until the stove is off.

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I'll start! I invested in a cordless vacuum, primarily because it came with a pet hair accessory but turns out, I love to use it for a quick dopamine hit! Getting a room or two to look clean-ish without the commitment of finding an outlet and dragging a chunky vaccum across the room is a massive help!

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Hmm I occasionally use three levels of nested parens. Is that considered a problem? I find it amusing.

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Mood chart (lemmy.world)
submitted 1 year ago by blueskiesoc to c/adhdwomen
 
 

For the visually impaired it reads:

ADHD moods:

  • No thoughts head empty
  • NO THOUGHTS HEAD FULL
  • I want to do EVERYTHING (the letters in the word 'everything' are in alternating colors like a rainbow)
  • I want to do NOTHING (the word 'nothing' is in blue text)
  • I want to do SOMETHING but can't pinpoint what (the word 'something' is in red text)
  • Hunnnggggrrrrryyyyyyy (letters written in alternating colors like a rainbow)
  • No eat...only hyperfocus
  • No pee...only hyperfocus (the word 'pee' is written in orange)
  • Bounce Off Wall (all written in purple text)
  • Cannot Stop Talking (Where Is Their Off Button) (parentheses part of text this time)
  • No talk. Only space out. ('talk' is written in pink, the letters for 'space' are written in alternating colors like a rainbow)
  • No focus...only distraction ('No focus' is written in red)
  • No distraction...only focus ('No distraction' is written in orange.)
  • I am going to clean my entire house in one go.
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me me (also me) (lemmy.world)
submitted 1 year ago* (last edited 1 year ago) by blueskiesoc to c/adhdwomen
 
 

For the visually impaired it is a Twitter screenshot from Dani Donovan, ADHD Comics, @danidonovan

and reads,

the ADHD urge to use parenthesis in every sentence (because every thought comes with additional bonus content)

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In my home I need to have a clock within eyeshot in every room. It helps me with time blindness.

I still sometimes lose track of time. I think they're unobtrusive. Really there's just one clock per room, unless I have my laptop and phone with me.

My nephew was once visiting and he said, "You have a lot of clocks." I never noticed it being unusual before he said that and now it's something I notice when I visit others--that they often don't have clocks.

Is it just me?

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Why I live alone 😅 (lemmy.dbzer0.com)
submitted 1 year ago by [email protected] to c/adhdwomen
 
 
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