this post was submitted on 10 Dec 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

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Every time I stand up, an invisible hour glass turns over. Nobody can see it, so you have no idea how much sand is in it, or how fast it's running out.

But when it runs out, I'm done.

Bonus: Every time it resets, it's a different size. Maybe this one is bigger? Maybe this one is smaller?

Nobody knows until it runs out.

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[–] [email protected] 9 points 1 week ago (1 children)

I can't decide which is worse - the little one that runs out faster than you were expecting, or the unexpected big one that tricks you into doing too much and wearing yourself out for multiple days afterwards 🫠

[–] jordanlund 7 points 1 week ago (1 children)

And when it HASN'T run out, it encourages you to do more "because who knows when I'll get the chance again..."

[–] [email protected] 5 points 1 week ago

Yep. It was one of those buggers that got me last week. I'm not saying that I'm getting old, but I'm still recovering...