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Press release:
"A Better Understanding of #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Could Benefit #LongCOVID Patients"
On the special edition of the journal WORK on #MEcfs & #postcovid
With quotes from Amy Mooney, an occupational therapist
@longcovid @mecfs #OT #OTalk #OccupationalTherapist #CFS #PwME #MyalgicE #CFSME #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #Covidlonghaulers #longhaulers
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@robotistry
I don't understand this distinction. For me it's the symptoms which seem to limit my capacity for activity.
@liv @longcovid @mecfs @tomkindlon Once the symptoms start, they limit me. As I pace, I reach a point where the symptoms are tolerable. I can either hold activity low (so the symptoms recede like the tide, with lots of small individual waves) or do more (the symptoms hold steady).
As my baseline rises, my symptom severity holds steady because it is more important to me to bathe more often and have a clean bed than to reduce my symptom severity.
@robotistry
Thanks, that makes sense in the context of what you experience (for me I can want to be clean all I like, but if I push it too far I literally can't walk or move my arms, so would paradoxically end up dirtier).
If I'm understanding you correctly, improving baselines and tolerance is more important than specific symptoms?