tomkindlon

joined 2 years ago
[–] [email protected] 1 points 1 year ago (7 children)

9/

“It is the clinician’s role in the care of patients with PEM/PESE to identify the symptoms that most interfere with activities of daily living; assist the patient with prioritizing meaningful and purposeful tasks; and analyze activities for modifications and adaptations.”

@longcovid @mecfs #OT #OTalk #mecfs #longcovid

[–] [email protected] 0 points 1 year ago (8 children)

8/

“The research presented in this special issue demonstrates the importance of early recognition of PEM for symptom management and improved quality of life. It describes a screening method for identifying who has and who does not have PEM and summarizes symptoms of PEM to differentiate people with ME/CFS and a control group.”

@longcovid @mecfs #mecfs #LongCovid

[–] [email protected] 0 points 1 year ago (9 children)

7/

“However, with the onslaught of Long COVID, more attention has been given to the devastating impact this disease [ME/CFS] has on quality of life. These patients need more qualified care providers who have the most up-to-date research, care guidelines, and the inquisitiveness to solve difficult medically complex cases."

@longcovid @mecfs #mecfs #cfs #pwme #PwMEs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

[–] [email protected] 0 points 1 year ago (10 children)

6/

"Access to appropriate medical care and progress in developing treatment have been very slow for ME/CFS patients. This is further complicated by having to fight the stigma of ME/CFS being viewed as a lazy or anxious person’s disease and not as the serious life-altering disease it is.

@longcovid @mecfs #mecfs #pwme #cfs

[–] [email protected] 0 points 1 year ago (11 children)

5/

“Patients often describe PEM [post-exertional malaise] as a “crash,” simultaneously feeling poisoned, drowning in cement, having the flu over and over, and being hit by a bus.”

#PwME #LongCovid #MEcfs
@longcovid @mecfs

[–] [email protected] 0 points 1 year ago (12 children)

4/

“ME/CFS deprives individuals of their occupations, relationships, and the ability to receive adequate healthcare.”

@longcovid @mecfs

[–] [email protected] 0 points 1 year ago* (last edited 1 year ago) (13 children)

3/

“ME/CFS is a multisystem complex disease with the cardinal symptom being post-exertional malaise (PEM); the worsening of symptoms following exertion. The Long COVID community refers to this symptom as post-exertional symptom exacerbation (PESE)” @longcovid @mecfs

[–] [email protected] 0 points 1 year ago* (last edited 1 year ago) (14 children)

2/

“Many people with Long COVID meet the diagnostic criteria of ME/CFS. Long COVID scientists and clinicians could expedite research and care protocols by utilizing information and experiences gained from the ME/CFS community”

@longcovid @mecfs #mecfs #cfs #pwme #LongCovid

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