this post was submitted on 06 Feb 2025
225 points (98.3% liked)

196

1965 readers
2302 users here now

Community Rules

You must post before you leave

Be nice. Assume others have good intent (within reason).

Block or ignore posts, comments, and users that irritate you in some way rather than engaging. Report if they are actually breaking community rules.

Use content warnings and/or mark as NSFW when appropriate. Most posts with content warnings likely need to be marked NSFW.

Most 196 posts are memes, shitposts, cute images, or even just recent things that happened, etc. There is no real theme, but try to avoid posts that are very inflammatory, offensive, very low quality, or very "off topic".

Bigotry is not allowed, this includes (but is not limited to): Homophobia, Transphobia, Racism, Sexism, Abelism, Classism, or discrimination based on things like Ethnicity, Nationality, Language, or Religion.

Avoid shilling for corporations, posting advertisements, or promoting exploitation of workers.

Proselytization, support, or defense of authoritarianism is not welcome. This includes but is not limited to: imperialism, nationalism, genocide denial, ethnic or racial supremacy, fascism, Nazism, Marxism-Leninism, Maoism, etc.

Avoid AI generated content.

Avoid misinformation.

Avoid incomprehensible posts.

No threats or personal attacks.

No spam.

Moderator Guidelines

Moderator Guidelines

  • Don’t be mean to users. Be gentle or neutral.
  • Most moderator actions which have a modlog message should include your username.
  • When in doubt about whether or not a user is problematic, send them a DM.
  • Don’t waste time debating/arguing with problematic users.
  • Assume the best, but don’t tolerate sealioning/just asking questions/concern trolling.
  • Ask another mod to take over cases you struggle with, if you get tired, or when things get personal.
  • Ask the other mods for advice when things get complicated.
  • Share everything you do in the mod matrix, both so several mods aren't unknowingly handling the same issues, but also so you can receive feedback on what you intend to do.
  • Don't rush mod actions. If a case doesn't need to be handled right away, consider taking a short break before getting to it. This is to say, cool down and make room for feedback.
  • Don’t perform too much moderation in the comments, except if you want a verdict to be public or to ask people to dial a convo down/stop. Single comment warnings are okay.
  • Send users concise DMs about verdicts about them, such as bans etc, except in cases where it is clear we don’t want them at all, such as obvious transphobes. No need to notify someone they haven’t been banned of course.
  • Explain to a user why their behavior is problematic and how it is distressing others rather than engage with whatever they are saying. Ask them to avoid this in the future and send them packing if they do not comply.
  • First warn users, then temp ban them, then finally perma ban them when they break the rules or act inappropriately. Skip steps if necessary.
  • Use neutral statements like “this statement can be considered transphobic” rather than “you are being transphobic”.
  • No large decisions or actions without community input (polls or meta posts f.ex.).
  • Large internal decisions (such as ousting a mod) might require a vote, needing more than 50% of the votes to pass. Also consider asking the community for feedback.
  • Remember you are a voluntary moderator. You don’t get paid. Take a break when you need one. Perhaps ask another moderator to step in if necessary.

founded 2 weeks ago
MODERATORS
 
you are viewing a single comment's thread
view the rest of the comments
[–] [email protected] 37 points 22 hours ago (2 children)

Would be a good start if doctors even started to acknowledge it.

[–] [email protected] 27 points 22 hours ago* (last edited 22 hours ago) (2 children)

Yep! Even large swaths of the medical field are ignoring it.

We had psychiatrists claiming it was mass hysteria until fairly recently.

[–] [email protected] 7 points 21 hours ago (1 children)

Mine said the symptoms and treatment were the same as depression anyway

[–] [email protected] 9 points 20 hours ago* (last edited 20 hours ago) (1 children)

I’m sorry you experienced gaslighting. Fuck that doctor for misinformation they said…

  1. There is no approved treatment for Long COVID, nor is there any rigourous large scale clinical trials showing benefit in objective measures
  2. There are multiple biological differences between long COVID and Depression

But yeah shitty doctors tend to just blame it on depression because they are too lazy to learn about something new.

[–] [email protected] 3 points 18 hours ago (1 children)

There are a number of studies suggesting that covid vaccines may improve long covid symptoms. Here is one such study: https://pmc.ncbi.nlm.nih.gov/articles/PMC9146071/#:~:text=There%20was%20considerable%20individual%20variation,long%20COVID%20patients%2C%20on%20average.

So while I'm not sure it counts as an approved treatment, it sure seems like it's worth trying (if you haven't already).

[–] [email protected] 1 points 13 hours ago* (last edited 13 hours ago) (1 children)

900 people is a fairly small sample size for a study like this, and the data is entirely self-reported. Given that long covid is suspected to be autoimmune-related and the 17.9% that reported worsening symptoms after vaccination, it seems premature to recommend everyone with long covid immediately get the vaccine.

I'm not a medical professional and you probably aren't either, so we shouldn't be taking one study and running with the shaky conclusions it draws. Let the scientific community do their work.

[–] [email protected] 3 points 7 hours ago (1 children)

I feel pretty comfortable recommending that people get the covid vaccine.

[–] [email protected] 1 points 2 hours ago

Even if they have a covid-related autoimmune disease?

[–] [email protected] 1 points 17 hours ago (1 children)

We had psychiatrists claiming it was mass hysteria until fairly recently.

Honestly i'm still not sure, but what if it is? Is there any proof that it is not?

I think that there's never been found any physically measurable indication for ME/CFS or Long Covid. From all we know, either it's hormone-meditated and we have no fucking clue what hormone(s) do(es) it, or it is really psychological, maybe some mechanism buried deep within the subconscious.

[–] [email protected] 7 points 11 hours ago* (last edited 11 hours ago)

With newer mri machines we can show an inflammation in the brainstem in ME/CFS patients. Since those machines are rare, expensive and often not necessary for a dignosis we don't know a lot yet.

[–] [email protected] 5 points 20 hours ago

After over 30 years in private practice, during which many people have come to my office, having been seen and denied any validity to their concerns from every other doctor they had seen, with what we now recognize as ME/CFS, it is gratifying to finally see that with the COVID pandemic MD's and researchers are finally gathering data, and hypothesizing treatments for PASC, and ME/CFS. I about lost my shit, when Dr. Daniel Griffen, on TWIV Clinical Update #1188, this past Friday mentioned, with a few citations taVNS (transcutaneous auricle Vagus Nerve Stimulation). If Dr. Griffin were in the room with me, I would have had a difficult time not whacking him about the head and shoulder with printouts of the myriad studies done on this technique. From the timestamps, episode notes on #1188: Transcutaneous vagus nerve stimulation improves Long COVID symptoms in a female cohort (Frontiers in Neurology) 28:03 https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2024.1393371/full Transcutaneous vagus nerve stimulation trials: https://www.mountsinai.org/clinical-trials/tvns-in-long-covid-19 https://www.centerwatch.com/clinical-trials/listings/NCT06585254/tvns-in-long-covid-19 30:55 Devices: https://pulsetto.tech/products/meet-pulsetto?pulsetto_offer_id=57&transaction_id=1024e5a0258b6647e262ba8fec5d62 https://www.dolphinmps.com/product/dolphin-neurostim-professional-single-kit-vagal-stim-kit/ 29:41, 31:16 A method for stimulating the vagus nerver where it comes to the surface of the body at the cymba concha region of the auricle/ear. I first came across this method from a paper published in August 2019, and much work has been published in the intervening years. Imagine, a cheap, non-invasive way to use electrotherapy, think TENS unit with a clip elecctrode for the auricle, and a stickon electrode on the upper trapezius (can you say it with me "CHEAP AND EFFECTIVE"), to effectively stimulate the Vagus nerve and re-balance the autonomic nervous system. Dysautonomia is a key symptom in PASC, and ME/CFS. I've been recommending this to patients for a couple years in the hope and reasonable expectation that it would help, and now there is a body of research to support it's use. PubMed, search taVNS, tVNS, and you will see what I'm talking about.