A Boring Dystopia

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There may be an existing solution to the chronic disease crisis, but a disabled patient seems to be the only person motivated enough to try to obtain it. And they've been failing going at it alone. (www.humanmicrobes.org)

submitted 7 months ago by MaximilianKohler to c/aboringdystopia

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[–] MaximilianKohler 1 points 6 months ago (1 children)

Speaking of, it also wouldn’t help anyone with an organ transplant either.

FMT may negate the need for most organ transplants. Eg:

Etc.

There is evidence that it would immensely help with preventing nearly all human-cell borne cancers however, and in my opinion, THAT’S something your messaging should focus strongly on.

Human Microbes doesn't do any specific messaging/advertising. Just the website where it covers the gut microbiome regulating the entire body and playing a major role in virtually every aspect of health & development. I would think that narrowing the focus to one type of cancer for example would be detrimental.

you’re touting this as a cure all, when really it’s a mass preventative (which again, is still extremely important and something really big).

I think the potential for both prevention and treatment exists for most conditions that are currently beyond medical capabilities. And there is a ton of evidence for this in the wiki I shared. Sure, there are some things that FMT won't be a solution to of course.

[–] Lumisal 1 points 6 months ago (1 children)

FMT may negate the need for most organ transplants. Eg:

Again, preventative care. Which in my opinion is equally if not more important than curing existing illness too. A perfect microbiome will not regrow an already permanently damaged organ, which is why transplants are done. Trust me, there's not enough organs (due to various reasons, not because of a lack) to give everyone a transplant, and bacteria are not a panacea. I'm trying to make you realize that it you keep speaking of it as if it is, with only a single biased source, while not admitting the limitations, hurts such a cause greatly.

Human Microbes doesn't do any specific messaging/advertising. Just the website where it covers the gut microbiome regulating the entire body and playing a major role in virtually every aspect of health & development. I would think that narrowing the focus to one type of cancer for example would be detrimental.

I think you misunderstood. Human-cell borne cancers mean all cancers that happen through natural cellular damage, degeneration, and other immuno-failing reasons.

Basically all cancers not caused by virii, environmental damage/injury, etc.

Which is the majority of cancers.

I think the potential for both prevention and treatment exists for most conditions that are currently beyond medical capabilities. And there is a ton of evidence for this in the wiki I shared. Sure, there are some things that FMT won't be a solution to of course.

Correlation does not equal causation. There is statistically significant evidence that there's a lot of potential here, but there is yet to be solid evidence that this actually treats most conditions. There hasn't been anywhere NEAR enough research to even make such a claim.

[–] MaximilianKohler 2 points 6 months ago (1 children)

I’m trying to make you realize that it you keep speaking of it as if it is, with only a single biased source, while not admitting the limitations, hurts such a cause greatly.

I think there may be a misunderstanding there. I certainly recognize that FMT and the gut microbiome have limitations.

There is statistically significant evidence that there’s a lot of potential here, but there is yet to be solid evidence that this actually treats most conditions.

That's all I've said as well.

Anyway, you seem to think that FMT's potential to treat/prevent most types of cancer is something that should be emphasized more. If you have specific suggestions I'm happy to hear them.

[–] Lumisal 1 points 6 months ago (1 children)

There's a lot to start with.

The first thing that should be maybe adopted by the scientific community is. Being a tad bit specific on its terminology when discussing certain things outside of research papers (and depending who is giving the grant, maybe certain grant applications).

FMT for example, while accurate, makes it a (literally) hard pill to swallow for those less scientifically knowledgeable. The issue of course being the fecal part of FMT. Starting by using just MT or GMT (G for Gut) would make people not as knowledge on the topic more interested in hearing more, rather than instantly turning them off. It would also be better to not use the acronym when bringing it up in a setting outside of, well, the microbiome community really.

Sure, we know it's fecal, but people who may support the cause in the future may not be as interested in the details, much like how many people who donate or support cancer research don't necessarily know specific terminology like R-CHOP for example.

The important part is to at least first get people to actually engage in the conversation, and not shut it down because "ew, I'm not taking poop transplants".

That's the very first thing that should be used/changed when bringing this up, in my opinion.

[–] MaximilianKohler 1 points 6 months ago (1 children)

There have been efforts to change the "fecal" part of the wording, but it's largely been unsuccessful. I personally don't think it's the biggest problem to focus on. I'd rather try to educate people that healthy poop is not repugnant. They think it's gross because their own poop is unhealthy.

[–] Lumisal 1 points 6 months ago

I mean... There's a saying that goes "shining a turd" for a reason. Even healthy poop is still poop. That's why people aren't usually clamoring to become a gastroenterologist when they grow up. It's likely a big factor as to why the gut microbiome wasn't really researched well / discovered until later compared to discoveries in other medical fields.

Trust me, they don't find poop repugnant because it's unhealthy, it's because it's poop. Even the healthy ones are waste products of the body.