this post was submitted on 13 May 2024
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Autism
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I haven't, but I have a relevant experience that might help you. I used to get horrible migraines starting around 7 years old. They were so bad, I would have been okay with dying during them. They would start coming on sometime in the early to mid-afternoon, and by night time, I was a complete mess. I would have to find some sort of odd position with my neck bent, cover my eyes, limit all noise, and not be cold at all. Light was especially painful. There was no medicine I had taken that would stop it. Around 1a-3a that night/morning, I would vomit, and within 15 mins, the migraine was mostly gone. I would then sleep like 12 hours. This would happen around once every three months, and I never recognized any triggers.
As I aged and was able to access healthcare on my own terms, I tried all sorts of medicines in the US. Tryptans just made me feel weird during the migraines. Prophylactics didn't do anything besides give me side effects. One time, I was hospitalized for another condition and got a migraine. They saw how bad it was that they straight up gave me a heavy IV shot of dilaudid. I threw up immediately, and the migraine went away. On a few occasions when I got migraines in Cuba while visiting, I would go to the local clinic. There they would inject me in the butt with diphenhydramine (Benadryl), dimenhydrinate^1 (Dramamine), and diazepam (Valium). My migraine would reduce in intensity and I'd be sleepy enough to pass out despite the lingering pain, then wake up the next feeling fantastic.
Eventually, I was referred to a neurologist that would inject botox into certain areas of my face, neck, and scalp every 3 months, and that seemed to work pretty well as a prophylactic, though the injections were moderately painful enough for me to be reluctant prior to the appointments. If I did feel a migraine coming on, I would take ibuprofen, and it would go away. I got these injections for about 2-3 years and was basically migraine free, but due to bureaucratic error, I fell off of their caseload and was too busy with school to try to fight my way back. When I got my next migraine, I felt it coming on and took 800 mg ibuprofen. It went away within 30 mins. I started experimenting, and noticed that from here on out, if I take 200 mg when I feel one coming on, it goes away within 30 mins. If I don't take the ibuprofen soon enough though, I will get a migraine. Now, I have ibuprofen everywhere I go. I don't know what happened, but that just started working. Perhaps the botox treatment for a few years was a necessary step for ibuprofen to start working, or maybe there was some other lifestyle change that somehow worked yet I'm not aware of. Regardless, I haven't had a true migraine in about 7-8 years, so I consider myself practically cured from migraines.
Hopefully, this can help you somehow!
tl;dr: Had horrible migraines. Only thing that would work were IV/IM drugs. Ended up getting botox for 2-3 years, then ibuprofen started to magically work if I took it quick enough.
1: They called it something like "globanol", but told me it was the same as dimenhydrinate.
I will jump on here and also suggest trying to see if ibuprofen or advil will work for you.
I have had debilitating migraines as well since around 10 years old. Can't see the dead center of my vision when one starts and then within 15 minutes I get the sparkles that begin to cloud my vision.
If I take Aspirin during that time, it can stop my migraine. I found this out much later in life, after experiencing the horrible pain and vomiting. My doctor has since prescribed me a chewable form of Zolmitripan if it gets worse and I end up vomiting all day.
The lighting in your room can also affect the migraine symptoms. LED light flickering at bad frequencies also triggered migraine.