this post was submitted on 25 Jul 2023
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EhlersDanlos

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A place to give and receive support regarding Ehlers Danlos Syndrome

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I feel like I can't stop oversharing when people ask me about my injuries. I'm in a medical boot right now from injuring my foot during a 5 mile walk, and people get confused when I tell them this. And then I end up explaining I have a connective tissue disorder.

I dont want to lie. But I wish I didn't get so many follow up questions. 😭

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[–] Kase 1 points 9 months ago (1 children)

hey it's not your fault, you're just answering their questions, nothing wrong with that :)

I get it though, it's hard for me to give any kind of simple explanation, especially because people have a million follow up questions. But they're only asking bc they're curious! You're not obligated to answer everybody's questions if you don't want to, but you're certainly not hurting anybody if you do!

My strategy is usually to give short/vague answers whenever people ask me questions (about most things, but especially about my health), and it lets me avoid long awkward conversations, but it inadvertently turns me into the "mysterious" guy. I don't mind it, but sometimes I wish they knew I don't mean to be rude or secretive, I just don't like telling my life story twelve times a day 乁⁠(⁠ ⁠•⁠_⁠•⁠ ⁠)⁠ㄏ

[–] Kase 1 points 9 months ago (1 children)

Nice to meet you btw! I was happy to find an eds community here :)

I hate oversharing irl, but I'll gladly go off the deep end on the internet \⁠(⁠^⁠o⁠^⁠)⁠/

[–] [email protected] 2 points 8 months ago

Nice to meet you as well! I hope this community becomes more active. I love the opportunity to overshare with internet strangers!