Neurodegenative Disease Support

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This community is a gathering place for all those affected by neurodegenerative diseases. Patients, family, friends and caregivers are welcome. Share info, ask questions, or vent about your day. Whatever you'd like to talk about, we're here to listen.

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ZenGrammy

Another resource on dementia: Being Patient (www.beingpatient.com)

submitted 1 year ago* (last edited 1 year ago) by [email protected] to c/neurodegdissupport

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From their "about us" page: "'Being Patient' is an editorially independent news and community platform that aims to create clarity around complex health issues and be a trusted, accurate source of information for the people impacted by a disease."

Some good, apparently well-vetted info on Alzheimer's and related dementias. Emphasis on personal narratives from people with dementia, and from caregivers.

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[–] ZenGrammy 2 points 1 year ago (1 children)

This is a nice resource. I'm glad you posted it. I pinned it for you because it has a lot of information that people could use over a long period of time.

[–] [email protected] 2 points 1 year ago

Great! I just today discovered it; decided to set up a Google alert for "Alzheimer" and there it was. Still exploring. Started in 2017; appears to update pretty frequently. I like that it's written in language that is manageable for non-scientist readers, but has links to the original published research materials for those who want more details. Appears to draw from and organize well a wide swath of materials.