Same honestly. Although mine happens less frequently, what hurts the most is when people around you diminish your pain.
My parents expect me to stand up while my legs hurt, and despite being warned by the doctors several times, they still try schetchy medecine and tell me to drop the medecine that actually works. When their "medecine" didn't work, it was somehow my fault, or I wasn't in that much pain.
They also ignore the doctors advice for my mental health, also claiming my problems are fake and that I'm doing it for attention. I'm honestly tired.
Is this a common thing for people with chronic illinesses? I don't understand how people could act so cruelly towards those in pain.