this post was submitted on 17 Apr 2024
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I had a couple seizures several years ago. Full on grand mal with an ER trip and all that fun.
The response from doctors has consistently been “yeah, sometimes people just have seizures.” They did CT scans, didn’t see anything abnormal and aren’t really interested in investigating more. Solution was that I’m just going to take anticonvulsants for the rest of my life.
I'm going through a very similar thing except with blood clots and anticoagulants. I was in the hospital for 3 days for a pulmonary embolism, but the docs couldn't figure out why. Instead, they just put me on the blood thinners for life.
This is a big bummer because I have a pretty active lifestyle (cycling, caving, scuba) and being on the meds means I can't feel safe doing these things anymore.
I'm trying right now to talk to different doctors and see if there's a way to safely stop the meds but I'm fighting against their flow charts that simply say this is the reality from now on.
Sorry to hear that. Are you better now?
Yeah - as long as I’m on Keppra I don’t have them.
It was just terrifying to wake up out of nowhere being carried by EMTs, spend a day in the hospital, be told “yeah idk go see a neurologist” and then just have to figure it out? Follow up with a neurologist was “yeah sometimes it happens, just don’t drive for the next six months.”