Neurodegenative Disease Support

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This community is a gathering place for all those affected by neurodegenerative diseases. Patients, family, friends and caregivers are welcome. Share info, ask questions, or vent about your day. Whatever you'd like to talk about, we're here to listen.

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Please be kind and supportive as you interact with others.

Do not ask for or offer medical advice. This is a community for support and encouragement only.

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founded 2 years ago

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ZenGrammy

Practical solutions for caregiver stress (www.mayoclinic.org)

submitted 2 years ago by ZenGrammy to c/neurodegdissupport

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I hope everyone is taking care of their physical and mental health today.

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[–] [email protected] 3 points 2 years ago

Thank you. For me, anyway, Mayo left off one of my top needs: information! I loathe getting patted on the head by doctors, or worse having what I am 100% positive is correct info poo-poohed because I don't have a medical doctorate. Gimme the hard stuff, please—if I don't understand, I'll dig around until I get at least the gist. And being able to sling the lingo when talking to a provider has definitely gotten me more attention (if not always the good kind).