About 2 months ago was when I got my blood patch after my lumbar puncture a week and a half prior.
For a week after my BP I had bad nerve pain in my legs. I was on prednisone for a week after and it helped it subside until now.
So about 2 months after the blood patch my nerve pain in my legs has come back. It took a month and a half after my blood patch for my csf leak symptoms to finally go away.
It’s like I just can’t win. The nerve pain in my legs has come back with a vengeance. It’s the worst when I’m laying down. It’s like someone is trying to rip off my legs from my the soles of my feet to my low back. It’s like a bad stinging pain that you just want to stop because it’s so uncomfortable. Not only that, but it’ll feel like bugs are crawling all over my legs.
It started off small but then has got worse every single day to where I can’t even sit comfortably anymore without nerve pain. Only been a week since it came back and it’s hit hard. My lower back where I got my blood patch has also gotten sensitive and hurts.
Not only that, but just a few days ago I started to get headaches again while standing up. I was like ahh this has to just be a coincidence no way I’m leaking again. Well, it hasn’t stopped. I am also getting nauseas.
Nerve pain is the absolute worst because you know it can grow to absolutely ruin your life and there’s no stopping point for it. I don’t know what to do anymore. I’m obviously going to talk to my doctors but like Jesus Christ. I can’t deal with damage from my lumbar puncture and blood patch.
What I don’t understand is that gabapentin doesn’t help this nerve pain at all, but my Hydrocodone does. Gabapentin helps my other nerve pain but does zip for this. I don’t know why Hydrocodone would help this situation. Ahhhhhhh I just want to scream it’s never ending
Oh I fully agree, definitely doesn't sound like fibro but that was more of an anecdote suggesting that the bugling discs might be worth looking into as a potential cause. Sorry I wasn't clear
No worries! It’s just the origin of my issues that has doctors incredibly confused. I had bulging discs prior to when this started a year ago. It all started with TMJ and escalated oddly. One of em is pretty bad but I do wonder how those discs could have played a role in all this
My personal theory based off of a lack of medical knowledge and solely logic is this, we don't truly understand nerves beyond them conveying information using some poorly understood electrochemical process.
So it wouldn't surprise me if issues that we seen related to pain could be due to some stressor affecting nerves and the chronic pain being the body's only way of saying "hey human! We got problems, you gotta fix this!".
With my best fern and her fibro it could very well be that spinal gaps result in fibro symptoms and it could very well be that spinal bugles are resulting in your issues.
Again I need to stress I'm not a professional doctor but I am a professional problem solver (it engineer) so when I see a data point and one looks kinda similar I call it out and wonder if there's something more going on.