This is my neck. I was born with this and it was discovered when I was 41. There are fused vertebrae from C4-C7, malformed discs, deformed vertebrae, a bulging disc touching my spinal cord and the dermoid tumour on my spinal cord.
this post was submitted on 18 Jun 2023
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Radiology
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Thank you.
It was quite a surprise when all this was discovered. I've been called a medical curiosity, a functional quadriplegic, and, most regularly, a miracle. From the reactions I've had over the years, I don't think anyone has seen anything like it. A MRI tech said he'd never seen a tumour the shape of mine. I live a normal life but have certain signs I have to watch out for. If I become incontinent or paralysed, my neurosurgeon will try to remove the tumour which, I'm told, is likely to paralyse or kill me. It definitely gives an interesting perspective on life.
I also have multiple other health issues. I'll try to find the MRI of my spine showing no disc at the base of the spine, a bulging disc deflecting the cauda equina, herniated discs, and degenerative disc disease. My most recent discovery is Wolff-Parkinson-White syndrome.