this post was submitted on 20 Jul 2023
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It's so good that the testing is available, but so sad that it was too late to help your partner. We're all seeing this happen these days, it seems. Medicine is improving so quickly, but, as of yet, not quickly enough to save our family members who are already sick.
Thank you—although the new test looks specifically for the chemical tau (which creates tangles that clog neural networks). I'm digging deeper into early-onset, and wonder if the new test would have done any good, since toxic amyloid-beta plaque deposits may be the bigger culprit there… not sure if tau tangles would have been present in measurable amounts in earlier stages. Just a hypothesis—I'm still digging. There may not be an answer out there (yet).
And as I've noted elsewhere, researchers seem unduly narrow in their selection of research participants during development, excluding minorities and women, and most likely atypical early-onset cases as well.