ME/CFS

48 readers

1 users here now

A community for people with Myalgic Encephalomyelitis (ME), sometimes called Chronic Fatigue Syndrome (CFS).

No quackery or denialism. Empathy first, is a must to participate. No unsolicited advice.

founded 1 month ago

MODERATORS

[email protected]

Ignored, blamed, and sometimes left to die – a leading expert in ME explains the origins of a modern medical scandal (theconversation.com)

submitted 2 weeks ago by [email protected] to c/[email protected]

3 comments fedilink hide all child comments

you are viewing a single comment's thread
view the rest of the comments

[–] [email protected] 2 points 2 weeks ago (1 children)

I wouldn’t suggest anyone who’s still struggling with accepting their ME to read this article because it’s very focused on the bleak aspects. Anyone that doesn’t have ME should read it though.

My evening is definitely ruined after reading the first half (I couldn’t finish it).

[–] [email protected] 1 points 2 weeks ago (1 children)

I wouldn’t suggest anyone who’s still struggling with accepting their ME to read this article because it’s very focused on the bleak aspects.

Sadly, I'm not sure that human society will change without challenging the bleak aspects. This is a lot to ask for an individual.

[–] [email protected] 3 points 2 weeks ago

Which is why people without ME should read it. I don’t know if you know anything about ME (if not then why haven’t you read the article?) but even reading an article like that can literally make someone with ME sick for a day or a week because of the emotional energy it costs to process it.