chronicpain

HI everyone. I have both chronic pain and a neurodegenerative disease. These things are not linked as far as I know, but it's hard to tell because my medical issues are kind of a spider web and some people with my condition do experience pain but it;s rare.

If anyone here also has a neurodegenerative disease (MS, Alzheimer's, Parkinson's,etc. or is a caregiver or friend/family member to someone who has one, we'd love to have you join us at Neurodegenerative Disease Support.

We are a small group at the moment, like most on Lemmy these days, trying to get some conversation and support flowing.

I started on 100mg x3 gabapentin and then worked my way up to 300mg x3 daily. Once I got to 300mg I became so damn stupid. So then I told my pain mgt doc and she almost fell out of her seating laughing by the way I told her I’m dumb but then she wanted to see if Lyrica would be any better. Got on 75mg x3 and I’m still very stupid.

I never remember anything and forget words mid sentence or what I’m even talking about.

Anyone else have this struggle also?

We all live with an acceptable amount of pain since we have no choice.

What do you rate your every day pain?

If someone swapped bodies with you, what would THEY rate that pain?

He said that just off the top of his head thinks it could be myositis or something along the lines of unbalance of spinal fluid. I forget exactly what the wording was.

He also looked at my thoracic spine mri and said my bulging disc was a lot worse than he thought it would be.

He also said I was hyper reflexive on my left side. I definitely noticed it. When he hit the top of my knee on my right side it did the normal kick but when he did my left knee my leg kicked all the way up so that it was straight. It startled him, I don’t think he expected that.

He said it was my whole left side but I wasn’t really paying attention until my leg kicked like that.

I’m getting another emg on Friday, a spinal tap soon, and some more blood work done.

He said that these first tests have a good likelihood of showing nothing. At least I’m finally gettting tests done

Several way too common pains are giving me hell, plus I'm preparing for taking two of my pained kitties for their last vet visit tomorrow, and my bad marriage is shredding my mind.

Ppppppp! So exhausted.

Also, I have no bloody clue why I didn't choose my ChronicEd persona for my name here. O_o. That's a comic I've been working on off and on.

Anyhoo, I'm just out of it right now, plus I really needed to post something just to push myself to get started here, heh. Pppp! Brain is loopy...Have a happy-ish.

So long story short at my original pain mgt clinic the only thing they would prescribe me is buprenorphine and tramadol. Buprenorphine made my knees and below swell. They put me on 300mg tramadol daily. With that I still can barely do anything everyday. Due to their restrictions I went ahead and went to a new pain mgt clinic.

I’ve had a couple apts there along with physical therapy but today was the day they finally got my urine test results and we were able to talk about medications. Since the max dose of tramadol is 400mg daily I do not have much room to go. She wants to try tramadol xr with ir to supplement it.

We are going to do this for a month but she is completely willing to go to stronger opiates. Even with my tramadol dose I’m at a 6 or 7 everyday. I was completely honest with her and told her my thoughts on it and how much pain I’m in even with tramadol. She is probably late 20s or early 30s and I’m only 25 so I think she is able to relate to me more and understand how important is it for me to be able to participate in life.

It was incredibly reassuring that I have finally found someone who is actually willing to work with me and give me the medication that I need even if it won’t be for a month. This whole year I’ve been stuck in my apartment only going to the grocery store. This whole time I haven’t been able to see the near future where I would be able to do anything. Now I can with her being my new doctor. I’m really excited even though I need to suffer for another month but I understand that she probably just wants to show that she did try something before going stronger.

Hey everyone! I personally will be moving off of Reddit and to here. I hope you come and join me. Wishing you all a low pain day today