this post was submitted on 14 Feb 2024
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I have a 10 yo daughter with PDA autism (and ADHD) who decided to refuse her medication in early January. We have noticed a big difference from when she took them so we really want her to get back on them, but nothing we have tried works. Anyone with some experience they want to share? We are grasping for straws at this point. Help

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[–] [email protected] 11 points 9 months ago* (last edited 9 months ago) (14 children)

I don't have kids nor have I had to take or give medication myself, so take this with a grain of salt.

The first question I'd try to figure out is why she isn't taking them. Maybe it's a texture thing (my parents tried to give me omega 3 capsules, they were just generally unpleasant to take, blegh), or perhaps she doesn't understand what they do or why they are important (autistic people like to have concrete reasons for things rather than "because I said so" or "it'll make you feel better").

[–] spainball 8 points 9 months ago (13 children)

We have gone through a slew of different meds and delivery systems that she outright rejected because of nasty taste or hard to ingest. But these ones were never an issue, especially since we introduced pill-covers with good taste. The only reason we are getting our of her is that if she takes them, we (the parents) win and ergo, she looses. We have tried with every way we can think of to explain what they do and why they are good, and why nobody looses and everyone wins. And sometimes it feels like we get through, but when its time to actually take them its like there is a muscular block that just wont go through with it and we end up in a several hours long, one sided, war

[–] [email protected] 2 points 9 months ago (4 children)

I don't know anything about PDA, but I wonder if she's thinking of it in terms of "winning and losing", if there's some kind of "win" you could trade her in exchange for taking the meds. Like it or not, Autistic brains (mine at least) often frame the world in a very transactional and utilitarian way. There may be something she wants.

[–] spainball 4 points 9 months ago (1 children)

We have tried trading it for things she wants and tried giving her some kind of choice in for example when she wants to take the meds or how, to give her a sense of ownership of the situation. We have told her it is ultimately her choice if she wants to take them or not, hoping she would feel the difference herself and choose to start again.

[–] [email protected] 2 points 9 months ago* (last edited 9 months ago) (1 children)

I admire you you saying that it's her choice (and she's soon going to reach the level of maturity where she should be self-advocating if she isn't already). But my question is, what will you do if she chooses to stop the meds and doesn't want to go back on them?

[–] spainball 3 points 9 months ago

I have no idea to be honest. Pivot I guess, just not sure where to

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